on Pheochromocytoma and Paraganglioma

Find information on upcoming Patient Education Webinars here!

“Feocromocitomas y Paragangliomas” con Dr. Jaydira Del Rivero Presentadora: Jaydira Del Rivero, MD Endocrinologist, Oncologist; NIH – en español


2022 Virtual Pheo Para Conference

(subtitles in multiple languages available!)

The Pheo Para Universe from A to Z – CRASH! Course in Pheo Para Superheroes

The Incredibles: A Phearless Phamily Story – Pheo Para Genetics

X-Ray Vision – Imaging for Pheo Para

Keeping Your Incredible Hulk Under Control & What Happens When It’s Not – Pre-Surgical Preparation & Hypertensive Crisis

POOF! WOW! – It’s Gone! Pheo Para Surgical Treatment

Treating our Small, but Mighty Superheroes – Pheo Para Pediatrics

Zap! Can Nuclear Medicine Give You Superpowers? – Non-Surgical Treatment of Metastatic & Unresectable Pheo Para

Living With Not-So-Super Symptoms – Adrenal Insufficiency After Bilateral Adrenalectomy

The Phuture for Pheo Para Superheroes – Clinical Trials & Research on the Horizon

The Pheo Para Superheroes Have Spoken – Listen Up! – Data Presented on SCOPPE Patient Survey

Wow! Ask the Pheo Para Superhero Whizzes – A Q&A Session

Webinar Series

Special Informational Webinar – After AZEDRA: Moving Forward Together – Dr. Camilo Jimenz, Dr. Erik Mittra, Dr. Daniel Pryma

Episode 28 – We Can’t Find the Pheo: No Tumor, Yet Symptoms – Dr. Hans Ghayee

Episode 27 – Five Years Since Azedra FDA Approval: What Have We Learned? – Dr. Vineeth Sukrithan (View an important announcement about AZEDRA here.)

Episode 26 – Diagnosing Pheo Para: Properly Reading Labs and Avoiding Pitfalls – Dr. Jacques Lenders and Dr. Christina Pamporaki

Episode 25 – Somatostatin Receptor PET Imaging: Why and When – Dr. David Taieb

Episode 24 – Third Annual Fireside Chat Ask the Doc – Dr. Karel Pacak

Episode 23 – World NET Cancer Day Special:  Effective Communication With Your Healthcare Team

Episode 22 – Topic Management of Skull Base Paragangliomas – Dr. Neil Patel

Episode 21 – Topic Precision Surgery – Dr. Electron Kebebew

Episode 20 – Topic SSI – Jeffrey Rodriguez

Episode 19 – Topic Disability – Jeffery Rodriguez

Episode 18 – Topic Ask the Doc/Fireside Chat – Dr. Karel Pacak

Episode 17 – Topic Navigating Insurance & Financial Toxicity – Joanna Fawzy Morales, Esq.

Episode 16 – Topic Radiopharmaceutical Therapy – Dr. Erik Mittra

Episode 15 – Topic Pediatric Pheo Para – Dr. Steven Waguespack

Episode 14 – Topic Pheo Para & Pregnancy – Dr. Irina Bancos

Episode 13 – Topic We Have a Genetic Mutation, Addressing Family Dynamics – Samantha Greenberg, GC

Episode 12 – Topic Ask the Doc – Dr. Karel Pacak

Episode 11 – Topic I Have a Genetic Mutation, Now What? – Samantha Greenberg, GC

Episode 10 – Topic Pheo, Para & GIST – Dr. Jason Sicklick

Episode 9 – Topic Pheo Para Research Update – Dr. Rory Clifton-Bligh

Episode 8 – Topic Manifestations of Pheo Para – Dr. Camilo Jimenez

Episode 7 – Topic Pheo Para Surgery – Drs. Michael Yeh & Masha Livhits

Episode 6 – Topic COVID-19 & Pheo Para v.3 – Drs. Justin Annes & Karel Pacak

Episode 5 – Topic: COVID-19 & Pheo Para v. 2 – Dr. Karel Pacak

Episode 4 – Topic: COVID-19 & Pheo Para – Drs. Justin Annes & Karel Pacak

Episode 3 – Topic: Pheo Para Genetics – Dr. Lauren Fishbein, UC Health, Download slides

Episode 2 – Topic: Biochemical Testing for Diagnosis – Graeme Eisenhofer, PhD & Jacques Lenders, MD, PhD, FRCP, Download slides

Episode 1 – Topic: Metatastatic Pheo Para – Dr. Karel Pacak, NIH, and moderated by Pat Collins, NBC4, WashingtonDownload slides

Tumor Tissue Donation Webinar

Learn how you can participate in research by donating your tumor tissue at



Special thanks to: