videos
on Pheochromocytoma and Paraganglioma
Find information on upcoming Patient Education Webinars here!
2022 Virtual Pheo Para Conference
Videos from our 2022 Virtual Pheo Para Conference can be found here (subtitles in multiple languages available!)
Webinar Series
Episode 24 – Third Annual Fireside Chat Ask the Doc – Dr. Karel Pacak
Episode 23 – World NET Cancer Day Special: Effective Communication With Your Healthcare Team
Episode 22 – Topic Management of Skull Base Paragangliomas – Dr. Neil Patel
Episode 21 – Topic Precision Surgery – Dr. Electron Kebebew
Episode 20 – Topic SSI – Jeffrey Rodriguez
Episode 19 – Topic Disability – Jeffery Rodriguez
Episode 18 – Topic Ask the Doc/Fireside Chat – Dr. Karel Pacak
Episode 17 – Topic Navigating Insurance & Financial Toxicity – Joanna Fawzy Morales, Esq.
Episode 16 – Topic Radiopharmaceutical Therapy – Dr. Erik Mittra
Episode 15 – Topic Pediatric Pheo Para – Dr. Steven Waguespack
Episode 14 – Topic Pheo Para & Pregnancy – Dr. Irina Bancos
Episode 13 – Topic We Have a Genetic Mutation, Addressing Family Dynamics – Samantha Greenberg, GC
Episode 12 – Topic Ask the Doc – Dr. Karel Pacak
Episode 11 – Topic I Have a Genetic Mutation, Now What? – Samantha Greenberg, GC
Episode 10 – Topic Pheo, Para & GIST – Dr. Jason Sicklick
Episode 9 – Topic Pheo Para Research Update – Dr. Rory Clifton-Bligh
Episode 8 – Topic Manifestations of Pheo Para – Dr. Camilo Jimenez
Episode 7 – Topic Pheo Para Surgery – Drs. Michael Yeh & Masha Livhits
Episode 6 – Topic COVID-19 & Pheo Para v.3 – Drs. Justin Annes & Karel Pacak
Episode 5 – Topic: COVID-19 & Pheo Para v. 2 – Dr. Karel Pacak
Episode 4 – Topic: COVID-19 & Pheo Para – Drs. Justin Annes & Karel Pacak
Episode 3 – Topic: Pheo Para Genetics – Dr. Lauren Fishbein, UC Health, Download slides
Episode 2 – Topic: Biochemical Testing for Diagnosis – Graeme Eisenhofer, PhD & Jacques Lenders, MD, PhD, FRCP, Download slides
Episode 1 – Topic: Metatastatic Pheo Para – Dr. Karel Pacak, NIH, and moderated by Pat Collins, NBC4, Washington, Download slides
Tumor Tissue Donation Webinar
Learn how you can participate in research by donating your tumor tissue at pattern.org.
2019 International Pheo Para Conference
Diagnostics for Pheochromocytoma Paraganglioma, Lauren Fishbein, MD, PhD, MTR
Differences Between Pheo & Para in Malignant Potential, Shoichiro Ohta, MD, PhD
Everychanging Role of the Caregiver, Anne Licker
Future Opportunities of Advanced PPGL, Modern Genetic Sequencing, Jeffrey Ross, MD
Genetic Implications for PPGL, Justin Annes, MD, PhD
Non-Surgical Approaches for Pheochromocytoma Paraganglioma, Joseph Dillon, MB, BCh, BAO
Pediatric Pheochromocytoma Paraganglioma, Jonathan Riddell, MD
PPGL Research: What’s on the Horizon, Roderick Clifton-Bligh, BSC MB BS FRACP PhD FFSc
State of the Art PPGL Developments, Karel Pacak, MD, PhD, DSc
Surgical Approaches for PPGL, Gennady Bratslavsky, MD
Tips from the Nurse Navigator, Bonnie Bennett, RN, BSN
Wellness for the Pheochromocytoma Paraganglioma Patient, Kaushal Nanavati, MD
What Every Patient & Physician Needs to Know, Ruban Dhaliwal, MD, MPH
Special thanks to:
