on Pheochromocytoma and Paraganglioma

Find information on upcoming Patient Education Webinars here!

“Feocromocitomas y Paragangliomas” con Dr. Jaydira Del Rivero Presentadora: Jaydira Del Rivero, MD Endocrinologist, Oncologist; NIH – en español


2022 Virtual Pheo Para Conference

Videos from our 2022 Virtual Pheo Para Conference can be found here (subtitles in multiple languages available!)

Webinar Series

Episode 24 – Third Annual Fireside Chat Ask the Doc – Dr. Karel Pacak

Episode 23 – World NET Cancer Day Special:  Effective Communication With Your Healthcare Team

Episode 22 – Topic Management of Skull Base Paragangliomas – Dr. Neil Patel

Episode 21 – Topic Precision Surgery – Dr. Electron Kebebew

Episode 20 – Topic SSI – Jeffrey Rodriguez

Episode 19 – Topic Disability – Jeffery Rodriguez

Episode 18 – Topic Ask the Doc/Fireside Chat – Dr. Karel Pacak

Episode 17 – Topic Navigating Insurance & Financial Toxicity – Joanna Fawzy Morales, Esq.

Episode 16 – Topic Radiopharmaceutical Therapy – Dr. Erik Mittra

Episode 15 – Topic Pediatric Pheo Para – Dr. Steven Waguespack

Episode 14 – Topic Pheo Para & Pregnancy – Dr. Irina Bancos

Episode 13 – Topic We Have a Genetic Mutation, Addressing Family Dynamics – Samantha Greenberg, GC

Episode 12 – Topic Ask the Doc – Dr. Karel Pacak

Episode 11 – Topic I Have a Genetic Mutation, Now What? – Samantha Greenberg, GC

Episode 10 – Topic Pheo, Para & GIST – Dr. Jason Sicklick

Episode 9 – Topic Pheo Para Research Update – Dr. Rory Clifton-Bligh

Episode 8 – Topic Manifestations of Pheo Para – Dr. Camilo Jimenez

Episode 7 – Topic Pheo Para Surgery – Drs. Michael Yeh & Masha Livhits

Episode 6 – Topic COVID-19 & Pheo Para v.3 – Drs. Justin Annes & Karel Pacak

Episode 5 – Topic: COVID-19 & Pheo Para v. 2 – Dr. Karel Pacak

Episode 4 – Topic: COVID-19 & Pheo Para – Drs. Justin Annes & Karel Pacak

Episode 3 – Topic: Pheo Para Genetics – Dr. Lauren Fishbein, UC Health, Download slides

Episode 2 – Topic: Biochemical Testing for Diagnosis – Graeme Eisenhofer, PhD & Jacques Lenders, MD, PhD, FRCP, Download slides

Episode 1 – Topic: Metatastatic Pheo Para – Dr. Karel Pacak, NIH, and moderated by Pat Collins, NBC4, WashingtonDownload slides

Tumor Tissue Donation Webinar

Learn how you can participate in research by donating your tumor tissue at


2019 International Pheo Para Conference

Diagnostics for Pheochromocytoma Paraganglioma, Lauren Fishbein, MD, PhD, MTR

Differences Between Pheo & Para in Malignant Potential, Shoichiro Ohta, MD, PhD

Everychanging Role of the Caregiver, Anne Licker

Future Opportunities of Advanced PPGL, Modern Genetic Sequencing, Jeffrey Ross, MD

Genetic Implications for PPGL, Justin Annes, MD, PhD

Non-Surgical Approaches for Pheochromocytoma Paraganglioma, Joseph Dillon, MB, BCh, BAO

Pediatric Pheochromocytoma Paraganglioma, Jonathan Riddell, MD

PPGL Research: What’s on the Horizon, Roderick Clifton-Bligh, BSC MB BS FRACP PhD FFSc

State of the Art PPGL Developments, Karel Pacak, MD, PhD, DSc

Surgical Approaches for PPGL, Gennady Bratslavsky, MD

Tips from the Nurse Navigator, Bonnie Bennett, RN, BSN

Wellness for the Pheochromocytoma Paraganglioma Patient, Kaushal Nanavati, MD

What Every Patient & Physician Needs to Know, Ruban Dhaliwal, MD, MPH


Special thanks to: