on Pheochromocytoma and Paraganglioma

Find information on upcoming Patient Education Webinars here!

Webinar Series

Episode 10 – Topic Pheo, Para & GIST – Dr. Jason Sicklick

Episode 9 – Topic Pheo Para Research Update – Dr. Rory Clifton-Bligh

Episode 8 – Topic Manifestations of Pheo Para – Dr. Camilo Jimenez

Episode 7 – Topic Pheo Para Surgery – Drs. Michael Yeh & Masha Livhits

Episode 6 – Topic COVID-19 & Pheo Para v.3 – Drs. Justin Annes & Karel Pacak

Episode 5 – Topic: COVID-19 & Pheo Para v. 2 – Dr. Karel Pacak

Episode 4 – Topic: COVID-19 & Pheo Para – Drs. Justin Annes & Karel Pacak

Episode 3 – Topic: Pheo Para Genetics – Dr. Lauren Fishbein, UC Health, Download slides

Episode 2 – Topic: Biochemical Testing for Diagnosis – Graeme Eisenhofer, PhD & Jacques Lenders, MD, PhD, FRCP, Download slides

Episode 1 – Topic: Metatastatic Pheo Para – Dr. Karel Pacak, NIH, and moderated by Pat Collins, NBC4, WashingtonDownload slides

Tumor Tissue Donation Webinar

Learn how you can participate in research by donating your tumor tissue at


2019 International Pheo Para Conference

Diagnostics for Pheochromocytoma Paraganglioma, Lauren Fishbein, MD, PhD, MTR

Differences Between Pheo & Para in Malignant Potential, Shoichiro Ohta, MD, PhD

Everychanging Role of the Caregiver, Anne Licker

Future Opportunities of Advanced PPGL, Modern Genetic Sequencing, Jeffrey Ross, MD

Genetic Implications for PPGL, Justin Annes, MD, PhD

Non-Surgical Approaches for Pheochromocytoma Paraganglioma, Joseph Dillon, MB, BCh, BAO

Pediatric Pheochromocytoma Paraganglioma, Jonathan Riddell, MD

PPGL Research: What’s on the Horizon, Roderick Clifton-Bligh, BSC MB BS FRACP PhD FFSc

State of the Art PPGL Developments, Karel Pacak, MD, PhD, DSc

Surgical Approaches for PPGL, Gennady Bratslavsky, MD

Tips from the Nurse Navigator, Bonnie Bennett, RN, BSN

Wellness for the Pheochromocytoma Paraganglioma Patient, Kaushal Nanavati, MD

What Every Patient & Physician Needs to Know, Ruban Dhaliwal, MD, MPH


Special thanks to:



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