videos
on Pheochromocytoma and Paraganglioma
Find information on upcoming Patient Education Webinars here!
2022 Virtual Pheo Para Conference
(subtitles in multiple languages available!)
The Pheo Para Universe from A to Z – CRASH! Course in Pheo Para Superheroes
The Incredibles: A Phearless Phamily Story – Pheo Para Genetics
X-Ray Vision – Imaging for Pheo Para
POOF! WOW! – It’s Gone! Pheo Para Surgical Treatment
Treating our Small, but Mighty Superheroes – Pheo Para Pediatrics
Living With Not-So-Super Symptoms – Adrenal Insufficiency After Bilateral Adrenalectomy
The Phuture for Pheo Para Superheroes – Clinical Trials & Research on the Horizon
The Pheo Para Superheroes Have Spoken – Listen Up! – Data Presented on SCOPPE Patient Survey
Wow! Ask the Pheo Para Superhero Whizzes – A Q&A Session
Webinar Series
Special Informational Webinar – After AZEDRA: Moving Forward Together – Dr. Camilo Jimenz, Dr. Erik Mittra, Dr. Daniel Pryma
Episode 28 – We Can’t Find the Pheo: No Tumor, Yet Symptoms – Dr. Hans Ghayee
Episode 27 – Five Years Since Azedra FDA Approval: What Have We Learned? – Dr. Vineeth Sukrithan (View an important announcement about AZEDRA here.)
Episode 26 – Diagnosing Pheo Para: Properly Reading Labs and Avoiding Pitfalls – Dr. Jacques Lenders and Dr. Christina Pamporaki
Episode 25 – Somatostatin Receptor PET Imaging: Why and When – Dr. David Taieb
Episode 24 – Third Annual Fireside Chat Ask the Doc – Dr. Karel Pacak
Episode 23 – World NET Cancer Day Special: Effective Communication With Your Healthcare Team
Episode 22 – Topic Management of Skull Base Paragangliomas – Dr. Neil Patel
Episode 21 – Topic Precision Surgery – Dr. Electron Kebebew
Episode 20 – Topic SSI – Jeffrey Rodriguez
Episode 19 – Topic Disability – Jeffery Rodriguez
Episode 18 – Topic Ask the Doc/Fireside Chat – Dr. Karel Pacak
Episode 17 – Topic Navigating Insurance & Financial Toxicity – Joanna Fawzy Morales, Esq.
Episode 16 – Topic Radiopharmaceutical Therapy – Dr. Erik Mittra
Episode 15 – Topic Pediatric Pheo Para – Dr. Steven Waguespack
Episode 14 – Topic Pheo Para & Pregnancy – Dr. Irina Bancos
Episode 13 – Topic We Have a Genetic Mutation, Addressing Family Dynamics – Samantha Greenberg, GC
Episode 12 – Topic Ask the Doc – Dr. Karel Pacak
Episode 11 – Topic I Have a Genetic Mutation, Now What? – Samantha Greenberg, GC
Episode 10 – Topic Pheo, Para & GIST – Dr. Jason Sicklick
Episode 9 – Topic Pheo Para Research Update – Dr. Rory Clifton-Bligh
Episode 8 – Topic Manifestations of Pheo Para – Dr. Camilo Jimenez
Episode 7 – Topic Pheo Para Surgery – Drs. Michael Yeh & Masha Livhits
Episode 6 – Topic COVID-19 & Pheo Para v.3 – Drs. Justin Annes & Karel Pacak
Episode 5 – Topic: COVID-19 & Pheo Para v. 2 – Dr. Karel Pacak
Episode 4 – Topic: COVID-19 & Pheo Para – Drs. Justin Annes & Karel Pacak
Episode 3 – Topic: Pheo Para Genetics – Dr. Lauren Fishbein, UC Health, Download slides
Episode 2 – Topic: Biochemical Testing for Diagnosis – Graeme Eisenhofer, PhD & Jacques Lenders, MD, PhD, FRCP, Download slides
Episode 1 – Topic: Metatastatic Pheo Para – Dr. Karel Pacak, NIH, and moderated by Pat Collins, NBC4, Washington, Download slides
Tumor Tissue Donation Webinar
Learn how you can participate in research by donating your tumor tissue at pattern.org.
Special thanks to:
