Webinar Series – Episode 4

Special thanks to Progenics for making this webinar series possible through an educational grant.

The information presented on this webinar is for educational purposes only and should not substitute the advice of your doctor(s) and medical team because they have in depth knowledge of your medical history and current situation.

Question 1 at 5:00: Are pheo para patients at higher risk of getting the illness and/or getting very sick.

Question 2 at 9:32: Are there additional precautions that adrenal insufficient patients can take and are adrenal insufficient patients immunocompromised?

Question 3 at 16:45: My doctor suggested delaying my regular 6-month scan.  I am a little uncomfortable with this, how do I know this is the right decision?

Question 4 at 23:35: Are you both using telehealth right now?  Can you give some tips on how to best advocate myself using telehealth?

Question 5 at 27:26: Does COVID-19 create hypoxia and does that make it worse for us with pseudo-hypoxia conditions already?

Question 6 at 32:24: In the absence of metastases or primary tumors, are SDHx at higher risk because the mutation causes the cell to partially rely on glycolysis for energy production similar to cancer cells?

Question 7 at 34:04: I have a head/neck para with partial vocal cord paralysis, if I get sick will this affect my ability to be ventilated?

Question 8 at 36:07: How long can you postpone PRRT or MIBG between treatments?

Question 9 at 41:20: How can I best prevent infection if I am sharing space with a health care provider?

Question 10 at 44:25: I have metastatic pheo para that has spread to the lungs, am I more at risk of getting infected and/or getting very sick?

Question 11 at 47:07: It’s very difficult to get appointments right now, even telehealth appointments.  Any suggestions on what constitutes an emergency?

Question 12 at 52:57: I am supposed to go for my 3rd octreotide injection next week in a clinical setting, should I go?