April 8, 2026
Latest News
2026 Rare Disease Week Recap
Read moreFebruary 11 - March 2, 2026
Caregiver Resource Page Kick-Off: Raffle for Signed Copies of Bethel Stevens’ Book!
Read moreJanuary 7, 2026
Register for Rare Disease Week
Read moreWatch the Recording for Education Webinar Series – 6th Annual Fireside Chat
Read moreEvents
April 8, 2026
Education Webinar – Navigating Head and Neck Paragangliomas: Expert Insights
Read moreMarch 26, 2026
Peer Support Meeting – March 2026
Read moreApril 7, 2026
Monthly Peer Support Meeting – April 2026
Read moreMay 5, 2026
Monthly Peer Support Meeting – May 2026
Read moreMay 28, 2026