February 1, 2022
Events
February 28, 2022
Rare Disease Day
Read moreMarch 1, 2022
Monthly Patient Support Meeting
Read moreApril 5, 2022
Monthly Patient Support Meeting
Read moreMay 3, 2022
news + events
February 1, 2022
February 28, 2022
March 1, 2022
April 5, 2022
May 3, 2022
Stay up to date with the latest research and news, events we are hosting, and other organizations that we are participating with as we move forward to find a cure!