From diagnosis and genetic testing to treatment decisions and lifelong surveillance, navigating PPGL can be complicated. Whether you’re newly diagnosed, seeking answers, or have been managing PPGL for years, knowing what to expect can help you make informed decisions about your care.
Join us for this 90 minute conversation, where you’ll learn :
- How PPGL is diagnosed and why the process can differ from patient to patient.
- The roles of biochemical testing, imaging, and genetic testing
- Why a multidisciplinary care team matters
- Important considerations before surgery and other treatments
- What to expect from ongoing surveillance and follow- up
- Questions to ask your healthcare team at each step
Featured Speakers
Clinical Moderator: Dr. Karal Pacak, MD, PhD, DSc Professional Director AKESO Center of Adrenal Endocrine Tumors Prague, Czech Republic
Speaker: Prof. Ali Saeed Alzahrani, MD. Consult Endocrinologist Endocrine Oncology King Faisal Specialist Hospital, Riyadh
Speaker: Prof. Dr. med. Svenja Nölting Board-certified endocrinologist, Assistant Professor for Endocrine Tumors, and joint Leader of the Neuroendocrine Tumor Board and the Endocrine and Neuroendocrine Tumor Center, ENETS Center of Excellence Zurich, at the Department of Endocrinology, Diabetology and Clinical Nutrition, University Hospital of Zurich, USZ, and the University of Zurich, UZH
Speaker: Hussam Alkaissi, MD MS Staff Clinician Adolescent Bone & Body Composition Laboratory, Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD),National Institutes of Health
Patient Navigator: Siobhan Farley RN, Patient Navigator, Research and Register Advisory Board, Patent Engagement Team
Bring your questions and gain practical information to help you navigate your PPGL journey. Our goal is to help you leave this session feeling grounded, prepared, and ready to have informed conversations with your own care team.
Wednesday, October 28, 2026
1:00–2:30 PM ET
Virtual | Free to attend
Made possible with support from
