The first weeks after a PPGL diagnosis can bring many new terms, tests, and appointments. This session is designed as one coordinated patient journey rather than four separate lectures. The goal is to help newly diagnosed patients and caregivers understand the typical sequence of PPGL evaluation and early care, recognize where that pathway may differ, and leave with clear next steps and questions to ask your care team.
Join us for this 90-minute conversation, where you’ll learn:
- How PPGL is diagnosed and why the process can differ from patient to patient
- The roles of biochemical testing, imaging, and genetic testing
- Why a multidisciplinary care team matters
- Important considerations before surgery and other treatments
- What to expect from ongoing surveillance and follow-up
- Questions to ask your healthcare team at each step
Our goal is to help you leave this session feeling grounded, prepared, and ready to have informed conversations with your own care team.
Featured Speakers
Clinical Moderator and Faculty
Karel Pacak, MD, PhD, DSc
Professor and Director, AKESO Center for Adrenal Endocrine Tumors, Prague, Czech Republic
Faculty
Prof. Ali Saeed Alzahrani, MD
Consultant Endocrinologist, Endocrine Oncology, King Faisal Specialist Hospital, Riyadh
Additional Expert Faculty: To Be Announced
Patient Navigators and Advocates
Siobhan Farley, RN
Patient Navigator, Research & Registry Advisory Board, Patient Engagement Committee
Joe Romero
PPGL Patient Navigator and Advocate
Bring Your Questions!
Our session includes dedicated time for questions and discussion with clinical experts and individuals who understand the PPGL journey through lived experience.
Made possible with support from Novartis.
Registration is open click here to register