Peer Navigation Support

Our peer navigation program offers patients and those affected an opportunity to connect with others, share knowledge and experience, build a supportive community, and reduce isolation and fear of living with the disease.

Currently, patients and caregivers can connect in the following ways:

One-on-one Peer Support

Our one-on-one peer navigation support program can match you up with someone who is also affected by pheo para.  You can connect with them by phone, email, text, or messenger.  This person will allow you an opportunity to share your pheo para experience in a non-judgmental, confidential environment.  Peers provide peer navigation support, encouragement, and information.  You can connect just once or for up to two hours per month.  If you would like to speak to a fellow patient, please fill out this form.

Online Peer Support Meeting

Please join us as we share and connect about our pheo para journey during this hour-long online monthly support group meeting. These meetings are led by patients and caregivers, just like you. Everyone will have an opportunity to introduce themselves. What would you like to talk about? Please share with us ahead of time by emailing info@pheopara.org.

This is an online meeting where we can see and hear each other. If you would like to listen in but do not want to participate, you can use the call-in number or turn off your video after you join.

Click here to register for the July 2026 Monthly Peer Support Meeting

Meet Our Peer Navigator Support Volunteers

If you are interested in volunteering with us as a peer support volunteer in any of the ways above, please fill out the form at www.pheopara.org/volunteer.

All peer support activities are for peer support purposes only and are not meant to direct a patient’s course of treatment.  Anyone seeking medical advice should contact their physician.