Peer Navigation Support

Our peer navigation program offers patients and those affected an opportunity to connect with others, share knowledge and experience, build a supportive community, and reduce isolation and fear of living with the disease.

Currently, patients and caregivers can connect in the following ways:

One-on-one Peer Support

Our one-on-one peer navigation support program can match you up with someone who is also affected by pheo para.  You can connect with them by phone, email, text, or messenger.  This person will allow you an opportunity to share your pheo para experience in a non-judgmental, confidential environment.  Peers provide peer navigation support, encouragement, and information.  You can connect just once or for up to two hours per month. Please fill out this form if you would like peer support.

https://www.zeffy.com/en-US/ticketing/one-on-one-support

Online Support Meetings

Online Peer Support Meeting: Join us for a 90-minute online monthly support group to share stories, connect, and support one another through the pheo para journey. Led by fellow patients. Meetings take place every first Tuesday of the month.

https://www.zeffy.com/en-US/ticketing/monthly-support-meeting

Online Caregiver Support Meetings: Join us for an hour-long online monthly meeting, a dedicated space for caregivers to share, find encouragement, and connect. Meetings take place every second Monday of the month.

https://www.zeffy.com/en-US/ticketing/caregiver-monthly-support-meeting

 

Meet Our Peer Navigator Support Volunteers

If you are interested in volunteering with us as a peer support volunteer in any of the ways above, please fill out the form at www.pheopara.org/volunteer.

All peer support activities are for peer support purposes only and are not meant to direct a patient’s course of treatment.  Anyone seeking medical advice should contact their physician.