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Pheo Para Alliance


keeping you up to date

Summer enews

The Pheo Para Alliance Backs Research Project Led by the Broad Institute of MIT and Harvard

NET Cancer Day

Facebook Live featuring Dr. Karel Pacak, NIH

Spring 2019 Newsletter

Behind the Mystery Video

Stephanie Alband Joins Pheo Para Alliance as New Executive Director

February 2019 Newsletter

Important news for members of the pheo/para community in Spain:

2019 Pheo Para International Conference

New York NET Patient and Caregiver Education Conference

In Case You Missed It…


what is pheo para?


Pheochromocytoma is commonly referred to as

“the great mimic”

because its symptoms are often mistaken for other conditions.


of patients found to have adrenal masses incidentally are diagnosed with pheochromocytoma

The incidence of pheochromocytoma is

1 in 3,000

patients will be diagnosed with a pheo para


Less than 1% of high blood pressure cases are due to pheochromocytoma

given these statistics, it is considered a rare disease.

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Your donation assists the Alliance as we work to support the pheo/para community through education, research, advocacy, and a global community of support.

Patient Support Services

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people that inspire

Kristi Eder

My name is Kristi Eder. In two weeks I will be 45, but I am loving 44 right now. Here I will sit and tell my story. My story starts very normally. I was born, I had…

Jeannie Lee

For as long as I can remember I’ve always had a difficult time breathing. As a child I participated in sports, and felt that I needed to train harder…or that is was just hot. These were some…

Thomas Furlong

About nine years of age, I began to experience frequent vomiting immediately following exercise. Profuse sweating and heart palpitations often accompanied this. Over the course of three years, I frequently went to my pediatrician to determine the…

our community is our inspiration.

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