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Donate Your Tumor Tissue

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COVID-19 & Pheo Para

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Newly Diagnosed Care Kit

For a limited time, we will send newly diagnosed patients a care kit.

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Monthly Online Peer Support Meeting

For Patients & Caregivers

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Pheo Para Alliance

NEWS + EVENTS

keeping you up to date

Giving Tuesday Now

Newly Diagnosed Care Kits

Spring 2020 Enews

COVID-19 Webinar

Pheo Para Surgery Webinar

COVID-19 & Pheo Para

Rare Disease Day

Online Caregiver Peer Support Meeting

Online Caregiver Peer Support Meeting

Online Caregiver Peer Support Meeting

Online Caregiver Peer Support Meeting

Online caregiver peer support meeting

EDUCATION

what is pheo para?

HOPE.COMMUNITY.PPA

Pheochromocytoma is commonly referred to as

“the great mimic”

because its symptoms are often mistaken for other conditions.

2%


of patients found to have adrenal masses incidentally are diagnosed with pheochromocytoma

The incidence of pheochromocytoma is


1 in 3,000

patients will be diagnosed with a pheo para


<1%

Less than 1% of high blood pressure cases are due to pheochromocytoma


given these statistics, it is considered a rare disease.

support ppa

Your donation assists the Alliance as we work to support the pheo/para community through education, research, advocacy, and a global community of support.

Patient Support Services

your support hub

FEATURED STORIES

people that inspire

Kristi Eder

My name is Kristi Eder. In two weeks I will be 45, but I am loving 44 right now. Here I will sit and tell my story. My story starts very normally. I was born, I had…

Jeannie Lee

For as long as I can remember I’ve always had a difficult time breathing. As a child I participated in sports, and felt that I needed to train harder…or that is was just hot. These were some…

Thomas Furlong

About nine years of age, I began to experience frequent vomiting immediately following exercise. Profuse sweating and heart palpitations often accompanied this. Over the course of three years, I frequently went to my pediatrician to determine the…

our community is our inspiration.

check out more inspiring stories from our patients

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