Center of Excellence Program

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Education Webinar Series

Radiopharmaceutical Therapy for Unresectable & Metastatic Pheo Para

Thursday, October 28
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“live pheo free” bracelets!


Monthly Online Peer Support Meeting

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Pheo Para Alliance


keeping you up to date

Pheo Para Alliance Designated UCLA Endocrine Center as Center of Excellence

Patient Feedback Requested: Oregon Health & Science University

Education Webinar: Navigating Insurance & Financial Toxicity

Never Give Up Phitness Challenge

Patient Feedback Requested – University of Iowa

Patient Feedback Requested – University of Michigan

Education Webinar: Radiopharmaceutical Therapy for Metastatic & Unresectable Pheo Para

CME Activity: Hereditary Pheochromocytoma and Paraganglioma: Strategies for Screening and Surveillance

Pheo Para Surgery Webinar presented by American Association of Endocrine Surgeons

Zoom Flash Mob – Awareness Week

Welcome Heather Steinman to the Board of Directors

2021 Awareness Week Toolkit


what is pheo para?


Pheochromocytoma is commonly referred to as

“the great mimic”

because its symptoms are often mistaken for other conditions.


of patients found to have adrenal masses incidentally are diagnosed with pheochromocytoma

The incidence of pheochromocytoma is

1 in 3,000

patients will be diagnosed with a pheo para


Less than 1% of high blood pressure cases are due to pheochromocytoma

given these statistics, it is considered a rare disease.

support ppa

Your donation assists the Alliance as we work to support the pheo/para community through education, research, advocacy, and a global community of support.

Patient Support Services

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people that inspire

Kristi Eder

My name is Kristi Eder. In two weeks I will be 45, but I am loving 44 right now. Here I will sit and tell my story. My story starts very normally. I was born, I had…

Jeannie Lee

For as long as I can remember I’ve always had a difficult time breathing. As a child I participated in sports, and felt that I needed to train harder…or that is was just hot. These were some…

Thomas Furlong

About nine years of age, I began to experience frequent vomiting immediately following exercise. Profuse sweating and heart palpitations often accompanied this. Over the course of three years, I frequently went to my pediatrician to determine the…

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