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Education Webinar Series: Fourth Annual Fireside Chat Ask the Doc

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Virtual Holiday Potluck

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Education Webinar Series: The Multiple Faces of SDHB-Related Paraganglioma

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Center of Excellence Program

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Pheo Para Educational Video Library

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Pheo Para Alliance


keeping you up to date

U. of Colorado Receives Center of Excellence Designation

Pheo Para Alliance Provides Two Abstract Awards for Pheo Para Research

Education Webinar Series – The Multiple Faces of SDHB-Related Paraganglioma

Virtual Holiday Potluck

Support Giving Tuesday – 2023

October 2023 Newsletter

World NET Cancer Day 2023

PPA Board Member Speaks with “Day One” Med Students

The Past is a Link to the Future Gala

Now Available – After AZEDRA: Moving Forward Together

Advocacy Task Force

Webinar Series – Episode 28


what is pheo para?


Pheochromocytoma is commonly referred to as

“the great mimic”

because its symptoms are often mistaken for other conditions.


of patients found to have adrenal masses incidentally are diagnosed with pheochromocytoma

The incidence of pheochromocytoma is

1 in 3,000

patients will be diagnosed with a pheo para


Less than 1% of high blood pressure cases are due to pheochromocytoma

given these statistics, it is considered a rare disease.

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Your donation assists the Alliance as we work to support the pheo/para community through education, research, advocacy, and a global community of support.

Patient Support Services

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people that inspire


On August 1st 2022 I was diagnosed with a pheochromocytoma on my right adrenal gland. I am a 55 year-old male living in Queensland, Australia. My pheo was quite active and found by pure luck. I went…


My journey with my Paraganglioma started near the end of 2021. I noticed I had an increased difficulty hearing out of my left ear. At times it felt there was something crawling around my inner ear, and…


My name is Jill. I’m not sure when I my symptoms first started but I know that I have had high blood pressure and a feeling of flushing for a very long time. I also had an…

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