Confused by Pheo Para Genetics?

Join us for this webinar on genetics of pheo para.
Monday, January 27, 4pm PT/7pm ET
Click here for more info.

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Monthly Online Peer Support Meeting

The first Tuesday of every month at 5pm PT/8pm ET.

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Pheo Para Alliance

NEWS + EVENTS

keeping you up to date

Show Your Support of HR 3772

Stronger United Gala

Pheo Para Online Support Meeting

Biochemical Testing for Diagnosis Webinar

We SCAN!

Net Cancer Day

Betsy’s Double Down Challenge

ISP 2020

The Pheo Para Alliance Backs Research Project Led by the Broad Institute of MIT and Harvard

NET Cancer Day

Facebook Live featuring Dr. Karel Pacak, NIH

BREAKING NEWS! Pheo para is more common than previously thought.

EDUCATION

what is pheo para?

HOPE.COMMUNITY.PPA

Pheochromocytoma is commonly referred to as

“the great mimic”

because its symptoms are often mistaken for other conditions.

2%


of patients found to have adrenal masses incidentally are diagnosed with pheochromocytoma

The incidence of pheochromocytoma is


1 in 3,000

patients will be diagnosed with a pheo para


<1%

Less than 1% of high blood pressure cases are due to pheochromocytoma


given these statistics, it is considered a rare disease.

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FEATURED STORIES

people that inspire

Kristi Eder

My name is Kristi Eder. In two weeks I will be 45, but I am loving 44 right now. Here I will sit and tell my story. My story starts very normally. I was born, I had…

Jeannie Lee

For as long as I can remember I’ve always had a difficult time breathing. As a child I participated in sports, and felt that I needed to train harder…or that is was just hot. These were some…

Thomas Furlong

About nine years of age, I began to experience frequent vomiting immediately following exercise. Profuse sweating and heart palpitations often accompanied this. Over the course of three years, I frequently went to my pediatrician to determine the…

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