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Awareness Week Videos

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Monthly Online Peer Support Meeting

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UPCOMING EVENTS

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Newly Diagnosed Care Kit

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Pheo Para Alliance

NEWS + EVENTS

keeping you up to date

Pheo Para Alliance Designates Addenbrooke’s Hospital at Cambridge a Center of Excellence

Patient Feedback Requested – UConn Health

Pheo Para Alliance Designates Penn Medicine as Center of Excellence

Patient Feedback Requested – Tufts

Stay In, Feel Good Gala

Patient Feedback Requested – St. Bartholomew’s

Pheo Para Alliance Designates Huntsman Cancer Institute as First Center of Excellence

Patient Feedback Requested – Ohio State

Pediatric Pheo Para Education Webinar

webinar series episode 14

March 2021 Enews

2021 Awareness Week Partner Opportunities

EDUCATION

what is pheo para?

HOPE.COMMUNITY.PPA

Pheochromocytoma is commonly referred to as

“the great mimic”

because its symptoms are often mistaken for other conditions.

2%


of patients found to have adrenal masses incidentally are diagnosed with pheochromocytoma

The incidence of pheochromocytoma is


1 in 3,000

patients will be diagnosed with a pheo para


<1%

Less than 1% of high blood pressure cases are due to pheochromocytoma


given these statistics, it is considered a rare disease.

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Your donation assists the Alliance as we work to support the pheo/para community through education, research, advocacy, and a global community of support.

Patient Support Services

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FEATURED STORIES

people that inspire

Kristi Eder

My name is Kristi Eder. In two weeks I will be 45, but I am loving 44 right now. Here I will sit and tell my story. My story starts very normally. I was born, I had…

Jeannie Lee

For as long as I can remember I’ve always had a difficult time breathing. As a child I participated in sports, and felt that I needed to train harder…or that is was just hot. These were some…

Thomas Furlong

About nine years of age, I began to experience frequent vomiting immediately following exercise. Profuse sweating and heart palpitations often accompanied this. Over the course of three years, I frequently went to my pediatrician to determine the…

our community is our inspiration.

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