Confused by Pheo Para Genetics?

Join us for this webinar on genetics of pheo para.

Monday, January 27, 4pm PT/7pm ET

Click here for more info.

Donate Your Tumor Tissue

Are you having surgery soon?
Read More

Monthly Online Peer Support Meeting

The first Tuesday of every month at 5pm PT/8pm ET.

Learn more here!

Pheo Para Alliance


keeping you up to date

Denver Meetup

Winter 2019 Enews

2019 Year in Review

2019 – A Look Back and Moving Forward

Fall 2019 Enews

Show Your Support of HR 3772

Stronger United Gala

Pheo Para Online Support Meeting


Net Cancer Day

Betsy’s Double Down Challenge

ISP 2020


what is pheo para?


Pheochromocytoma is commonly referred to as

“the great mimic”

because its symptoms are often mistaken for other conditions.


of patients found to have adrenal masses incidentally are diagnosed with pheochromocytoma

The incidence of pheochromocytoma is

1 in 3,000

patients will be diagnosed with a pheo para


Less than 1% of high blood pressure cases are due to pheochromocytoma

given these statistics, it is considered a rare disease.

support ppa

Your donation assists the Alliance as we work to support the pheo/para community through education, research, advocacy, and a global community of support.

Patient Support Services

your support hub


people that inspire

Kristi Eder

My name is Kristi Eder. In two weeks I will be 45, but I am loving 44 right now. Here I will sit and tell my story. My story starts very normally. I was born, I had…

Jeannie Lee

For as long as I can remember I’ve always had a difficult time breathing. As a child I participated in sports, and felt that I needed to train harder…or that is was just hot. These were some…

Thomas Furlong

About nine years of age, I began to experience frequent vomiting immediately following exercise. Profuse sweating and heart palpitations often accompanied this. Over the course of three years, I frequently went to my pediatrician to determine the…

our community is our inspiration.

check out more inspiring stories from our patients

view all stories

get involved!

find out more about upcoming events and opportunities to get involved!

upcoming events