Patient Conference in Gainesville, FL

October 28, 2023

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Special Informational Webinar: After AZEDRA

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The Past is a Link to the Future Gala

September 30, Bethesda, MD
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Educational Webinar: We Can’t Find the Pheo

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Center of Excellence Program

Find an Experienced Medical Team

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Pheo Para Educational Video Library

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Pheo Para Alliance


keeping you up to date

Center of Excellence Announcement

Special Informational Webinar — After AZEDRA: Moving Forward Together

December Monthly Peer Support Meeting

November Monthly Peer Support Meeting

New Visions & Perspectives on Pheochromocytoma & Paraganglioma

Patient Feedback Requested – University of Colorado

Important Update: AZEDRA (iobenguane I-131)

Research Rookie – Edition 4

The Edge of Tomorrow: Visions of Our Phuture

Communicating Your Story for Phuture Benefit: A Storyteller Workshop (Part 2 of 2)

Communicating Your Story for Phuture Benefit: A Storyteller Workshop (Part 1 of 2)

Back to the Phuture: A Pheo Para Pop Culture Retrospective


what is pheo para?


Pheochromocytoma is commonly referred to as

“the great mimic”

because its symptoms are often mistaken for other conditions.


of patients found to have adrenal masses incidentally are diagnosed with pheochromocytoma

The incidence of pheochromocytoma is

1 in 3,000

patients will be diagnosed with a pheo para


Less than 1% of high blood pressure cases are due to pheochromocytoma

given these statistics, it is considered a rare disease.

support ppa

Your donation assists the Alliance as we work to support the pheo/para community through education, research, advocacy, and a global community of support.

Patient Support Services

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people that inspire


On August 1st 2022 I was diagnosed with a pheochromocytoma on my right adrenal gland. I am a 55 year-old male living in Queensland, Australia. My pheo was quite active and found by pure luck. I went…


My journey with my Paraganglioma started near the end of 2021. I noticed I had an increased difficulty hearing out of my left ear. At times it felt there was something crawling around my inner ear, and…


My name is Jill. I’m not sure when I my symptoms first started but I know that I have had high blood pressure and a feeling of flushing for a very long time. I also had an…

our community is our inspiration.

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