Just in!

“live pheo free” bracelets!

Shop

Awareness Week Videos

Check out these videos featuring patients, caregivers & healthcare providers!
View Awareness Week Videos

Monthly Online Peer Support Meeting

For Patients & Caregivers

Learn more here!

UPCOMING EVENTS

Join us!

learn more about what’s going on at Pheo Para Alliance

upcoming webinars and events

Newly Diagnosed Care Kit

Newly diagnosed? Get a free care kit.

Pheo Para Alliance

NEWS + EVENTS

keeping you up to date

Pheo Para Alliance Designates Huntsman Cancer Institute as First Center of Excellence

Patient Feedback Requested – Ohio State

Patient Feedback Requested – Cambridge University

Pediatric Pheo Para Education Webinar

March 2021 Enews

2021 Awareness Week Partner Opportunities

Lantheus Announces Presentation Featuring AZEDRA® (iobenguane I 131) at ENDO 2021

Patient Feedback Requested!

Research Rookie

Patient Feedback Requested!

Rare Disease Day

Pheo & Pregnancy

EDUCATION

what is pheo para?

HOPE.COMMUNITY.PPA

Pheochromocytoma is commonly referred to as

“the great mimic”

because its symptoms are often mistaken for other conditions.

2%


of patients found to have adrenal masses incidentally are diagnosed with pheochromocytoma

The incidence of pheochromocytoma is


1 in 3,000

patients will be diagnosed with a pheo para


<1%

Less than 1% of high blood pressure cases are due to pheochromocytoma


given these statistics, it is considered a rare disease.

support ppa

Your donation assists the Alliance as we work to support the pheo/para community through education, research, advocacy, and a global community of support.

Patient Support Services

your support hub

FEATURED STORIES

people that inspire

Kristi Eder

My name is Kristi Eder. In two weeks I will be 45, but I am loving 44 right now. Here I will sit and tell my story. My story starts very normally. I was born, I had…

Jeannie Lee

For as long as I can remember I’ve always had a difficult time breathing. As a child I participated in sports, and felt that I needed to train harder…or that is was just hot. These were some…

Thomas Furlong

About nine years of age, I began to experience frequent vomiting immediately following exercise. Profuse sweating and heart palpitations often accompanied this. Over the course of three years, I frequently went to my pediatrician to determine the…

our community is our inspiration.

check out more inspiring stories from our patients

view all stories

get involved!

find out more about upcoming events and opportunities to get involved!

upcoming events