Looking for New Treatment Options?

Clinical trials help advance new treatments and may offer additional care options. They are advancing care for pheochromocytoma and paraganglioma worldwide!

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🔬 View active studies

💬 Talk with your doctor

The Pheo Para Alliance does not endorse specific studies. Always consult your physician before making care decisions.

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Peer Support Meeting – March 3rd

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Peer Support

1 on 1 and monthly peer support meetings

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Pheo Para Alliance

NEWS + EVENTS

keeping you up to date

Caregiver Resource Page Kick-Off: Raffle for Signed Copies of Bethel Stevens’ Book!

Register for Rare Disease Week

Watch the Recording for Education Webinar Series – 6th Annual Fireside Chat

Help Us Reach Every Newly Diagnosed Patient

PPA Wecomes a New Executive Director

Education Webinar Series – 6th Annual Fireside Chat

Featuring Leslie Coffin for INCA’s 2025 Global NET Cancer Day Campaign

Watch the Recording for Education Webinar Series – Belzutifan Webinar

Samantha Greenberg, PhD, MS, MPH, CGC, Joins Research Advisory Board

Seeking Executive Director

Stephanie Alband Leaving PPA

Patient Education Webinar: Belzutifan

Learn

what is pheo para?

HOPE.COMMUNITY.PPA

Pheochromocytoma is commonly referred to as

“the great mimic”

because its symptoms are often mistaken for other conditions.

2%


of patients found to have adrenal masses incidentally are diagnosed with pheochromocytoma

The incidence of pheochromocytoma is


1 in 3,000

patients will be diagnosed with a pheo para


<1%

Less than 1% of high blood pressure cases are due to pheochromocytoma


given these statistics, it is considered a rare disease.

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Your donation assists the Alliance as we work to support the pheo/para community through education, research, advocacy, and a global community of support.

Patient Support Services

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FEATURED STORIES

people who inspire

Albandari

November 2023 marked a pivotal moment in my life. I was on a business trip in Paris, where the stress of work weighed heavily on my shoulders. On November 13th, my birthday, I returned to Riyadh, eager…

Paul

Looking back, my symptoms started as early as age 10. I lived in a heightened state of anxiety, and every day stresses seemed to be getting gradually more unmanageable. I didn’t know what was normal, so I…

Rod

Well, my story starts by an accident (literally). I fell off a roof and ended up having an x-ray, where a keen-eyed consultant noticed something other than broken bones during a CT scan. A few days later,…

our community is our inspiration.

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