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Betsy’s Double Down Challenge

All donations will be matched 100% Sept 24 – Oct 1

$5,000 goal reached!  $11,255 raised!

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Pheo Para Alliance


keeping you up to date

Tumor Tissue Donation Webinar


Net Cancer Day

Betsy’s Double Down Challenge

Tumor Tissue Donation Webinar

Summer enews

The Pheo Para Alliance Backs Research Project Led by the Broad Institute of MIT and Harvard

NET Cancer Day

BREAKING NEWS! Pheo para is more common than previously thought.

Spring 2019 Newsletter

Behind the Mystery Video

Stephanie Alband Joins Pheo Para Alliance as New Executive Director


what is pheo para?


Pheochromocytoma is commonly referred to as

“the great mimic”

because its symptoms are often mistaken for other conditions.


of patients found to have adrenal masses incidentally are diagnosed with pheochromocytoma

The incidence of pheochromocytoma is

1 in 3,000

patients will be diagnosed with a pheo para


Less than 1% of high blood pressure cases are due to pheochromocytoma

given these statistics, it is considered a rare disease.

support ppa

Your donation assists the Alliance as we work to support the pheo/para community through education, research, advocacy, and a global community of support.

Patient Support Services

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people that inspire

Kristi Eder

My name is Kristi Eder. In two weeks I will be 45, but I am loving 44 right now. Here I will sit and tell my story. My story starts very normally. I was born, I had…

Jeannie Lee

For as long as I can remember I’ve always had a difficult time breathing. As a child I participated in sports, and felt that I needed to train harder…or that is was just hot. These were some…

Thomas Furlong

About nine years of age, I began to experience frequent vomiting immediately following exercise. Profuse sweating and heart palpitations often accompanied this. Over the course of three years, I frequently went to my pediatrician to determine the…

our community is our inspiration.

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