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Monthly Online Peer Support Meeting

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Pheo Para Alliance


keeping you up to date

Pheo Para Project Launches Campaign to Education Healthcare Providers

Calling all Patients, Caregivers & Healthcare Providers!

PA Patient Meetup

Credited Medical Education: Metastatic Pheochromocytoma

Pheo Para Alliance Designates Two New Centers of Excellence

Patient Feedback Requested – Cleveland Clinic

Research Rookie

webinar series episode 15

Patient Feedback Requested – UCLA

Pheo Para Awareness Week

Pheo Para Alliance Designates Addenbrooke’s Hospital at Cambridge a Center of Excellence

Patient Feedback Requested – UConn Health


what is pheo para?


Pheochromocytoma is commonly referred to as

“the great mimic”

because its symptoms are often mistaken for other conditions.


of patients found to have adrenal masses incidentally are diagnosed with pheochromocytoma

The incidence of pheochromocytoma is

1 in 3,000

patients will be diagnosed with a pheo para


Less than 1% of high blood pressure cases are due to pheochromocytoma

given these statistics, it is considered a rare disease.

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Your donation assists the Alliance as we work to support the pheo/para community through education, research, advocacy, and a global community of support.

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people that inspire

Kristi Eder

My name is Kristi Eder. In two weeks I will be 45, but I am loving 44 right now. Here I will sit and tell my story. My story starts very normally. I was born, I had…

Jeannie Lee

For as long as I can remember I’ve always had a difficult time breathing. As a child I participated in sports, and felt that I needed to train harder…or that is was just hot. These were some…

Thomas Furlong

About nine years of age, I began to experience frequent vomiting immediately following exercise. Profuse sweating and heart palpitations often accompanied this. Over the course of three years, I frequently went to my pediatrician to determine the…

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