Virtual Phitness Challenge

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May 5-19

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Pheo Para Educational Video Library

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Center of Excellence Program

Find an Experienced Medical Team

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Pheo Para Alliance


keeping you up to date

Dr. Karel Pacak Incoming Chair, Medical Advisory Board

Se solicita la opinión de los pacientes

Winter 2023

Rare Disease Day: Pheo Para Alliance + Pheo vs Fabulous!

Monthly Peer Support Meeting

Monthly Peer Support Meeting

Monthly Peer Support Meeting

UPenn 12th Annual Focus on Neuroendocrine Tumors

Pheo Para Alliance Welcomes New Board Chair!

INCA provides sporadic and genetic pheo para fact sheets

Rare Disease Day!

IDEA Mixer


what is pheo para?


Pheochromocytoma is commonly referred to as

“the great mimic”

because its symptoms are often mistaken for other conditions.


of patients found to have adrenal masses incidentally are diagnosed with pheochromocytoma

The incidence of pheochromocytoma is

1 in 3,000

patients will be diagnosed with a pheo para


Less than 1% of high blood pressure cases are due to pheochromocytoma

given these statistics, it is considered a rare disease.

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Patient Support Services

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people that inspire


On August 1st 2022 I was diagnosed with a pheochromocytoma on my right adrenal gland. I am a 55 year-old male living in Queensland, Australia. My pheo was quite active and found by pure luck. I went…


My journey with my Paraganglioma started near the end of 2021. I noticed I had an increased difficulty hearing out of my left ear. At times it felt there was something crawling around my inner ear, and…


My name is Jill. I’m not sure when I my symptoms first started but I know that I have had high blood pressure and a feeling of flushing for a very long time. I also had an…

our community is our inspiration.

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