Phitness Challenge

May 6-19

Learn More

Center of Excellence Program

Find an Experienced Medical Team

learn more

Pheo Para Educational Video Library

watch online

help others

volunteer with PPA

Pheo Para Alliance

NEWS + EVENTS

keeping you up to date

4th Annual Never Give Up Phitness Challenge

May Monthly Peer Support Meeting

June Monthly Peer Support Meeting

5th Annual Pheo Para Awareness Week

Pheo Para Phenom Volunteer Award Nominations

Phearless (and Phriends) in DC

Education Webinar Series: Recent International Guidelines on Management of Carriers and Pheo Para Patients with SDH Pathogenic Variants

2024 Volunteer Appreciation Week

Stephanie Alband, PPA Executive Director Takes Office as President of INCA

PPA Announces Collaboration with SDHB Pheo Para Coalition

Metastatic Survey Results

Meet Us in DC For Rare Disease Week on Capitol Hill

EDUCATION

what is pheo para?

HOPE.COMMUNITY.PPA

Pheochromocytoma is commonly referred to as

“the great mimic”

because its symptoms are often mistaken for other conditions.

2%


of patients found to have adrenal masses incidentally are diagnosed with pheochromocytoma

The incidence of pheochromocytoma is


1 in 3,000

patients will be diagnosed with a pheo para


<1%

Less than 1% of high blood pressure cases are due to pheochromocytoma


given these statistics, it is considered a rare disease.

support ppa

Your donation assists the Alliance as we work to support the pheo/para community through education, research, advocacy, and a global community of support.

Patient Support Services

your support hub

FEATURED STORIES

people that inspire

Joe

On August 1st 2022 I was diagnosed with a pheochromocytoma on my right adrenal gland. I am a 55 year-old male living in Queensland, Australia. My pheo was quite active and found by pure luck. I went…

Dani

My journey with my Paraganglioma started near the end of 2021. I noticed I had an increased difficulty hearing out of my left ear. At times it felt there was something crawling around my inner ear, and…

Jill

My name is Jill. I’m not sure when I my symptoms first started but I know that I have had high blood pressure and a feeling of flushing for a very long time. I also had an…

our community is our inspiration.

check out more inspiring stories from our patients

view all stories

get involved!

find out more about upcoming events and opportunities to get involved!

upcoming events