Separate Phacts & Phiction Gala

September 21, Hartford, CT
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Center of Excellence Program

Find an Experienced Medical Team

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Pheo Para Educational Video Library

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Pheo Para Alliance


keeping you up to date

Separate Phacts and Phiction: Patient Education Session

Learn About Clinical Trials & How Everyone Can Progress Research

SNMMI Annual Patient Education Day Recap

PPA Welcomes Erik Mittra, MD, PhD to the Medical Advisory Board

PPA Welcomes Svenja Nölting, MD to the Medical Advisory Board

PPA Announces 2024 Awareness Week Committee Chair

PPA Welcomes New Patient Engagement Committee Chair!

Research Rookie – Edition 4

Education Webinar – Radiosurgery: What, Why and When

4th Annual Phitness Challenge – That’s a Wrap!

5th Annual Pheo Para Awareness Week — Call for Submissions

Toronto Meetup — Let’s Get Together!!


what is pheo para?


Pheochromocytoma is commonly referred to as

“the great mimic”

because its symptoms are often mistaken for other conditions.


of patients found to have adrenal masses incidentally are diagnosed with pheochromocytoma

The incidence of pheochromocytoma is

1 in 3,000

patients will be diagnosed with a pheo para


Less than 1% of high blood pressure cases are due to pheochromocytoma

given these statistics, it is considered a rare disease.

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Patient Support Services

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people that inspire


On August 1st 2022 I was diagnosed with a pheochromocytoma on my right adrenal gland. I am a 55 year-old male living in Queensland, Australia. My pheo was quite active and found by pure luck. I went…


My journey with my Paraganglioma started near the end of 2021. I noticed I had an increased difficulty hearing out of my left ear. At times it felt there was something crawling around my inner ear, and…


My name is Jill. I’m not sure when I my symptoms first started but I know that I have had high blood pressure and a feeling of flushing for a very long time. I also had an…

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