June 26, 2022

Portland Regional Patient Conference

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Center of Excellence Program

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“live pheo free” bracelets!


Monthly Online Peer Support Meeting

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Pheo Para Alliance


keeping you up to date

SNMMI 2022 Patient Education Day

SDHB Mouse Model

Pheo Para Alliance Welcomes Michael L. Campbell to the Board of Directors

Pheo Para Alliance Welcomes Aimee Powell

webinar series – episode 21

Education Webinar Series – Management of Skull Base Paragangliomas

Portland Regional Conference

Pheo Para & Diversity/Equity/Inclusion

webinar series – episode 20

In Memoriam

Webinar Series Episode 19

Patient Feedback Requested – UT Health San Antonio


what is pheo para?


Pheochromocytoma is commonly referred to as

“the great mimic”

because its symptoms are often mistaken for other conditions.


of patients found to have adrenal masses incidentally are diagnosed with pheochromocytoma

The incidence of pheochromocytoma is

1 in 3,000

patients will be diagnosed with a pheo para


Less than 1% of high blood pressure cases are due to pheochromocytoma

given these statistics, it is considered a rare disease.

support ppa

Your donation assists the Alliance as we work to support the pheo/para community through education, research, advocacy, and a global community of support.

Patient Support Services

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people that inspire

Sierra’s Story

Sierra’s story begin in Febuary 2016. She was 8 years old. Out of nowhere she had no appetite, wasn’t drinking and lost about 20 lbs. Over a 6 month span, she was fussing horribly about right side…


Ever since I was six years old, I had complained to my parents that my heart hurt. This was a daily issue, getting sent to get EKG’s constantly and every result came back normal. Doctors refused to…


My name is Tony Kipkemboi. I was born and raised in Kenya before moving to the United States for college at 19 years of age. My college was paid for through athletic scholarship (cross country & track.)…

our community is our inspiration.

check out more inspiring stories from our patients

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