Separate Phacts & Phiction Gala

September 21, Hartford, CT
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NEWS + EVENTS

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PPA Announces 2024 Awareness Week Committee Chair

PPA Welcomes New Patient Engagement Committee Chair!

Research Rookie – Edition 4

SCOPPE Survey Published in Cancer Journal

4th Annual Phitness Challenge – That’s a Wrap!

5th Annual Pheo Para Awareness Week — Call for Submissions

Toronto Meetup — Let’s Get Together!!

2024 Research Travel Abstract Awards for Early Career Investigators

Annual SNMMI Patient Education Day

Annual SNMMI Hill Day Recap

INCA Executive Director Attends ENETS Symposium

4th Annual Never Give Up Phitness Challenge

EDUCATION

what is pheo para?

HOPE.COMMUNITY.PPA

Pheochromocytoma is commonly referred to as

“the great mimic”

because its symptoms are often mistaken for other conditions.

2%


of patients found to have adrenal masses incidentally are diagnosed with pheochromocytoma

The incidence of pheochromocytoma is


1 in 3,000

patients will be diagnosed with a pheo para


<1%

Less than 1% of high blood pressure cases are due to pheochromocytoma


given these statistics, it is considered a rare disease.

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people that inspire

Joe

On August 1st 2022 I was diagnosed with a pheochromocytoma on my right adrenal gland. I am a 55 year-old male living in Queensland, Australia. My pheo was quite active and found by pure luck. I went…

Dani

My journey with my Paraganglioma started near the end of 2021. I noticed I had an increased difficulty hearing out of my left ear. At times it felt there was something crawling around my inner ear, and…

Jill

My name is Jill. I’m not sure when I my symptoms first started but I know that I have had high blood pressure and a feeling of flushing for a very long time. I also had an…

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