Pheo Para Alliance

NEWS + EVENTS

keeping you up to date

IDEA Initiative

Calling Patients & Healthcare Providers – Take This Survey!

American Association of Endocrine Surgeons Webinar

Awareness Week: Pheo vs Fabulous

Awareness Week: Mindfulness in Pheo Para

Awareness Week: IDEA Panel Discussion

Center of Excellence Program Announces Updates

3rd Annual Pheo Para Awareness Week

Pheo Para Alliance Announces Launch of New Clinical Trials Search Tool

UT Health San Antonio Recognized as Center of Excellence

Spring 2022 enews

March 2022 enews

EDUCATION

what is pheo para?

HOPE.COMMUNITY.PPA

Pheochromocytoma is commonly referred to as

“the great mimic”

because its symptoms are often mistaken for other conditions.

2%


of patients found to have adrenal masses incidentally are diagnosed with pheochromocytoma

The incidence of pheochromocytoma is


1 in 3,000

patients will be diagnosed with a pheo para


<1%

Less than 1% of high blood pressure cases are due to pheochromocytoma


given these statistics, it is considered a rare disease.

support ppa

Your donation assists the Alliance as we work to support the pheo/para community through education, research, advocacy, and a global community of support.

Patient Support Services

your support hub

FEATURED STORIES

people that inspire

Sierra’s Story

Sierra’s story begin in Febuary 2016. She was 8 years old. Out of nowhere she had no appetite, wasn’t drinking and lost about 20 lbs. Over a 6 month span, she was fussing horribly about right side…

Lauren

Ever since I was six years old, I had complained to my parents that my heart hurt. This was a daily issue, getting sent to get EKG’s constantly and every result came back normal. Doctors refused to…

Tony

My name is Tony Kipkemboi. I was born and raised in Kenya before moving to the United States for college at 19 years of age. My college was paid for through athletic scholarship (cross country & track.)…

our community is our inspiration.

check out more inspiring stories from our patients

view all stories

get involved!

find out more about upcoming events and opportunities to get involved!

upcoming events