new board chair!

>read more here

2022 Accomplishments

Watch the Video

 

Center of Excellence Program

Find an Experienced Medical Team

learn more

recording of third annual fireside chat now available

watch recording now

Pheo Para Alliance

NEWS + EVENTS

keeping you up to date

Pheo Para Alliance Welcomes New Board Chair!

INCA provides sporadic and genetic pheo para fact sheets

Rare Disease Day!

IDEA Mixer

Monthly Peer Support Meeting

Webinar Series – Episode 24

Webinar Series – Episode 23

Chad Gilbert & New Found Glory Bandmates Share Video

Pheo Para Alliance Welcomes Dr. Jaydira Del Rivero to the Medical Advisory Board

Educational Webinar Series — Third Annual Fireside Chat Ask the Doc

Giving Tuesday to Support Pheo Para Patients

Watch ALL 2022 Virtual Pheo Para Conference Videos Here!

EDUCATION

what is pheo para?

HOPE.COMMUNITY.PPA

Pheochromocytoma is commonly referred to as

“the great mimic”

because its symptoms are often mistaken for other conditions.

2%


of patients found to have adrenal masses incidentally are diagnosed with pheochromocytoma

The incidence of pheochromocytoma is


1 in 3,000

patients will be diagnosed with a pheo para


<1%

Less than 1% of high blood pressure cases are due to pheochromocytoma


given these statistics, it is considered a rare disease.

support ppa

Your donation assists the Alliance as we work to support the pheo/para community through education, research, advocacy, and a global community of support.

Patient Support Services

your support hub

FEATURED STORIES

people that inspire

Joe

On August 1st 2022 I was diagnosed with a pheochromocytoma on my right adrenal gland. I am a 55 year-old male living in Queensland, Australia. My pheo was quite active and found by pure luck. I went…

Dani

My journey with my Paraganglioma started near the end of 2021. I noticed I had an increased difficulty hearing out of my left ear. At times it felt there was something crawling around my inner ear, and…

Jill

My name is Jill. I’m not sure when I my symptoms first started but I know that I have had high blood pressure and a feeling of flushing for a very long time. I also had an…

our community is our inspiration.

check out more inspiring stories from our patients

view all stories

get involved!

find out more about upcoming events and opportunities to get involved!

upcoming events