Research Announcement

PPA, SDHB Pheo-Para Coalition, & Paradifference Fdn. partner with The Broad Institute of MIT and Harvard.
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UPCOMING EVENTS

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Pheo Para Alliance

NEWS + EVENTS

keeping you up to date

NET Cancer Day

Facebook Live featuring Dr. Karel Pacak, NIH

BREAKING NEWS! Pheo para is more common than previously thought.

Spring 2019 Newsletter

Stephanie Alband Joins Pheo Para Alliance as New Executive Director

February 2019 Newsletter

November 2018 Newsletter

Important news for members of the pheo/para community in Spain:

New York NET Patient and Caregiver Education Conference

In Case You Missed It…

Troopers at PACT Digital Health Summit

Trooper Wins Gold!

EDUCATION

what is pheo para?

HOPE.COMMUNITY.PPA

Pheochromocytoma is commonly referred to as

“the great mimic”

because its symptoms are often mistaken for other conditions.

2%


of patients found to have adrenal masses incidentally are diagnosed with pheochromocytoma

The incidence of pheochromocytoma is


1 in 3,000

patients will be diagnosed with a pheo para


<1%

Less than 1% of high blood pressure cases are due to pheochromocytoma


given these statistics, it is considered a rare disease.

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Your donation assists the Alliance as we work to support the pheo/para community through education, research, advocacy, and a global community of support.

Patient Support Services

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FEATURED STORIES

people that inspire

Kristi Eder

My name is Kristi Eder. In two weeks I will be 45, but I am loving 44 right now. Here I will sit and tell my story. My story starts very normally. I was born, I had…

Jeannie Lee

For as long as I can remember I’ve always had a difficult time breathing. As a child I participated in sports, and felt that I needed to train harder…or that is was just hot. These were some…

Thomas Furlong

About nine years of age, I began to experience frequent vomiting immediately following exercise. Profuse sweating and heart palpitations often accompanied this. Over the course of three years, I frequently went to my pediatrician to determine the…

our community is our inspiration.

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