Privacy Policy

This is the web site of Pheo Para Alliance. Access is anonymous and free. The privacy of visitors is important to us.

Information Sharing

We do not share information that may identify a visitor without their prior permission. We use your information only for its intended business purpose. We do not sell or trade your information to other organizations or individuals.

Funding and Advertising

Our web site is funded by individual, corporate and foundation grants, sponsorships and donations. We do not share user information with our funding sources. We have no direct advertising on our site at this time. However, we use third party services including Constant Contact, Google, and Paypal which do have advertising. We cannot control the content of their advertisements.


Some of our third party providers drop cookies on your computer to save your identifying information. For example, Paypal, which processes donations and transactions from our website, drops a cookie on your computer to maintain your individual information.  This information is not shared with any third party.

Information Protection

Pheo Para Alliance takes every possible measure to ensure that your information is not compromised in any way.  Online information is transmitted via a secure server using encryption technology.

If you choose to send us email, we may retain the contents of your email message, our reply and your email address as part of our ongoing customer service efforts. We reserve the right to contact you after you have contacted us and may send future email and/or surveys to you about Pheo Para Alliance. You may notify us via email if you wish to discontinue electronic communication.

Access Logs

We do not maintain access logs for the pages on our site. We have a simple hit counter on several pages which does not store IP information.

Mailing List and Member Database

The information you submitted to join our informational online mailing list is stored by Constant Contact, and is not shared with any third party. We keep your personal information as accurate, complete, and up-to-date as is required to fulfill the purpose(s) for which you provided us with your personal information. Upon request in writing, we will remove your personal information from our databases, except where legislation or regulation requires our retention of it (for example, charitable giving history tied to income tax receipts.)

Tumor Tissue Donation

Tumor tissue donation for the Rare Cancer Dependency Map is facilitated by  Their privacy policy can be found here.  If you consent to donating your tumor tissue, may convert or combine your information into de-identified or aggregated data that does not include any personal information or personal health information of any individual user and share that information with Broad Institute for research purposes. may disclose any such de-identified or aggregated data without restriction.


If you have any questions about our website or our Privacy Policy, please contact us at