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SCOPPE Survey Published in Cancer Journal

PPA is proud to announce that “Patient-reported burden associated with pheochromocytoma/paraganglioma diagnosis” was recently published in Endocrine-Related Cancer 2024 Vol. 31, issue 6.  The abstract of the article can be viewed here.

Patients requesting full access to the article can email us at

Special thanks to all of the contributors for making this possible, most notably Dr. Katherine I. Wolf and Dr. Lauren Fishbein.

The article is about the Scan of Pheochromocytoma & Paraganglioma Experiences (SCOPPE) survey conducted by Pheo Para Alliance.  This survey focused on exploring the patient voice to verify, educate, explore connections and strategically guide the Pheo Para Alliance was take by 270 pheo para patients in mid-2022.

Learn more about the SCOPPE Survey here.