take action

join the movement

Help strengthen the voice of our community and the rare disease community on Capitol Hill by asking your legislator to join the Rare Disease Congressional Caucus. Our partners at Rare Disease Legislative Advocates (RDLA) make it easy! (You’ll get an opportunity in this letter to inform your legislator about pheochromocytoma and paraganglioma.) Click the button below to get started:

make a difference

other ways to take action

find out how you can support the pheo para cause!

learn more