Help strengthen the voice of our community and the rare disease community on Capitol Hill by asking your legislator to join the Rare Disease Congressional Caucus. Our partners at Rare Disease Legislative Advocates (RDLA) make it easy! (You’ll get an opportunity in this letter to inform your legislator about pheochromocytoma and paraganglioma.) Click the button below to get started:
Stay up to date with the latest research and news, events we are hosting, and other organizations that we are participating with as we move forward to find a cure!
