#youarenotalone

Be a part of our Patient Locator Map.  You can connect with others in your area through this interactive global patient/caregiver finder.

Fill out the form below. Everyone who fills out the form will be represented on this map to unify our patients worldwide so everyone diagnosed feels supported and empowered.  Patients who have shared their social media links and email can connect with each other.

The map is updated a few times a week with entries.  THIS MAP WILL NOT UPDATE AFTER YOU FILL OUT THE FORM, IT IS UPDATED MANUALLY BE US.  SO, YOU WON’T SEE YOUR ENTRY UNTIL APPROXIMATELY 48 HOURS AFTER YOU ENTER YOUR INFO.

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