You can find more details about the program here.
UNITED STATES
Please provide patient feedback for any US Centers of Excellence here.
California
Stanford Health Care
875 Blake Wilbur Dr. Palo Alto, CA 94304
Director(s) – Dr. Justin Annes, Endocrinology/Genetics; Dr. Electron Kebebew, Surgery
Coordinator -Kruti Naik, Patients call/email for appt., knaik@stanfordhealthcare.org, 650-736-1355
Link to site
Stanford 2nd Opinion Information.
UCLA Endocrine Center – Clinical Center of Excellence
100 UCLA Medical Plaza, Suite 310 Los Angeles, CA 90095
Director(s) – Dr. Masha Livhits, Endocrine Surgery; Dr. Michael Yeh, Endocrine Surgery
Coordinator – Jennifer Isorena, NP, jlsorena@mednet.ucla.edu, 310-267-7838
Link to site.
Colorado
University of Colorado – Research & Clinical Center of Excellence
1635 Aurora Court, Anschutz Outpatient Pavilion, 6th Floor
Aurora, CO 80045
Director – Dr. Lauren Fishbein, Associate Professor, Endocrinology
Coordinator – Angela Grant, 303-724-4156
Florida
University of Florida College of Medicine – Clinical Center of Excellence
1600 SW Archer Rd
Gainesville, FL 32608
Director(s) – Dr. Hans Ghayee, Endocrinology, Dr. Aditya Shirali, Endocrine Surgeon
Coordinator – Shannon Snyder, Shannon.Snyder@medicine.ufl.edu, (352)-733-3122
Patient Ambassador – Sandra Dillon, uf.coe.patientambassador@gmail.com
Link to site.
Iowa
University of Iowa Health Care Neuroendocrine Tumor Program – Clinical Center of Excellence
200 Hawkins Dr., 21602 PFP, Iowa City, IA
Director(s) – Dr. Joseph Dillon, Endocrinology; Dr. Alpa Sidhu, Genetics/Genomics
Coordinator – Kimberly Miller, kimberly-d-miller@uiowa.edu, 319-356-4200
Link to site.
Massachusetts
Dana Farber Cancer Institute/Brigham & Womens Hospital – Clinical Center of Excellence
450 Brookline Ave, Boston, MA 02215
Director(s) – Dr. Kimberly Perez, Medical Oncology, Cancer Genetics & Dr. Anand Vaidya, Endocrinology
Link to site.
Referring physicians, please call 877-441-3324.
Tufts Medical Center – Clinical Center of Excellence
800 Washington St, Boston, MA 02111
Director(s) – Dr. Ron Lechan, Endocrinology & Neuroendocrinology & Dr. Arthur Tischler, Pathology
Coordinator – Morgan Wilson, morgan.wilson@tuftsmedicalcenter.org, 617-636-8920
Link to site (call the number above for scheduling)
Michigan
University of Michigan Health – Clinical Center of Excellence
1500 E Med Ctr Dr, Ann Arbor, MI 48109
Director(s) – Dr. Tobias Else, Endocrinology; Jenae Osborne, Genetic Counseling
Coordinator – Allison Melito, atrill@med.umich.edu, 734-647-8901
Link to site.
Ohio
Ohio State University – The James Comprehensive Cancer Center – Clinical Center of Excellence
2050 Kenny Rd, Columbus, OH 43221
Director(s) – Dr. Vineeth Sukrithan, Oncology, Dr. Barbara Miller, Endocrine Surgery/Surgical Oncology & Dr. Lawrence Kirschner, Endocrinology
Coordinator – Dr. Barbra S. Miller, barbra.miller@osumc.edu, 614-366-3381 (for scheduling – ask for Justin Smith)
Link to site.
Cleveland Clinic Endocrinology & Metabolism Institute; Dept. of Endocrine Surgery – Clinical Center of Excellence
9500 Euclid Ave, Cleveland OH
Director(s)- Dr. Eren Berber; Endocrine Surgery
Coordinator – 216-445-0555, option 4
Link to site
Pennsylvania
Penn Medicine – Clinical Center of Excellence
3400 Civic Center Blvd., Philadelphia, PA 19104
Director(s) – Dr. Debbie Cohen, Hypertension/Nephrology; Dr. Daniel Pryma, Nuclear Medicine, Imaging, and Therapy
To make an appointment/Coordinator – Bonita Bennett – to schedule a consult or for referring physician contact bonita.bennett@pennmedicine.upenn.edu / 215-349-5562
Link to site.
Texas
UT Health San Antonio – Clinical & Research Center of Excellence
8300 Floyd Curl Drive, San Antonio, TX 78229
Director(s) – Dr. Sapna Raghunathan, Endocrinology (Clinical Director) raghunathans@uthscsa.edu, & Dr. Patricia Dahia, Hematology & Oncology, (Research Director), dahia@uthscsa.edu
Link to site.
UT Southwestern Medical Center – Clinical & Research Center of Excellence
5323 Harry Hines Blvd
Dallas, TX 75390
Director(s) – Dr. Oksana Hamidi, Endocrinology & Dr. Samantha Greenberg, Genetics
Coordinator – Megan Templo, megan.templo@utsouthwestern.edu, 214-645-2563 (to make an appointment or physician referral).
Link to site.
Utah
Huntsman Cancer Center – Clinical & Research Center of Excellence
2000 Circle of Hope Dr., Salt Lake City, UT 84112
Director(s) – Dr. Luke Buchmann, ENT/Endocrine Surgeon & Dr. Neil Patel, Otolaryngology, Head & Neck Surgeon
Coordinator – Samantha Greenberg, samantha.greenberg@hci.utah.edu, 801-587-5554
Patient Ambassador – Marcie Whipple, marieboleywhipple@gmail.com
Link to site.
SPAIN
University & Polytechnic Hospital La Fe0 – Clinical Center of Excellence
Avda Fernando Abril Martorell N 106, Valencia, PC 46126 Spain
Director(s) – Dr. Maribel del Olmo-Garcia, Endocrinology and Nutrition Department & Dr. Angel Segura, Medical Oncology and Genetic Counselor|
Coordinator – Neus Garci¬a Albors
endocrinologiaynutricion_lafe@gva.es
+34 961244150
Patient Ambassador – Maria Consuelo Lloret Senabre, xelloret1@gmail.com
http://www.hospital-lafe.com//
Formulario de opinión del paciente
FRANCE
Hôpital Européen Georges Pompidou – Research & Clinical Center of Excellence
20 rue Leblanc 70 015 Paris, France
Directors – Dr. Amar Laurence, Full Professor & Dr. Judith Favier, Professor
Centre de reference en maladies rares de la surrénale, Unité d’hypertension artérielle
nathalie.donnet@aphp.fr
01 56 09 20 72/ 01 56 09 29 72
Rendez vous par internet : https://centre-hypertension.org/soins/consultations/rendez-vous/
commentaires des patients demandés – hôpital européen georges-pompidou
UNITED KINGDOM
Addenbrookes Hospital at Cambridge University – Clinical Center of Excellence
Cambridge Biomedical Campus, Hills Road, Cambridge UK, CB2OQQ
Director(s) – Dr. Ruth Casey, Endocrinology & Dr. Eamonn Maher, Genetics
Coordinator – Danilo Inchiappa, danilo.inchiappa@nhs.net , +44 (1)223348799
Patient Ambassador – Jo Grey, jo.grey@amend.org.uk, +44 (0)1892516076
St. Bartholomew’s Hospital – Clinical Center of Excellence
West Smithfield, London, EC1A 7BE UK
Director(s) – Dr. Scott Akker, Endocrinologist & Dr. William Drake, Endocrinologist
Coordinator – Aklima Khatun, aklima.khatun4@nhs.net, +4402037658577
Patient Ambassador, Jo Grey, jo.grey@amend.org.uk, +44 (0)1892516076
Link to site.