This page serves as a resource for those seeking information about the future of AZEDRA (iobenguane i-131), how to get involved on this issue and information on other therapies.
As of early October 2023, this is a developing issue and we are still gathering information. To stay up-to-date, be sure to check back frequently for updates, follow us on social media and subscribe to our newsletter!
what is the advocacy task force?
The Advocacy Task Force was formed in August, 2023 as a response to the announcement that Lantheus would be discontinuing production of AZEDRA in the first quarter of 2024. Its mission statement is as follows:
The overall purpose of the Advocacy Task Force is to create a strategy to support pheo para patients who will be affected by the unavailability of Azedra:
This support may include gathering information about access to alternative treatments, advocacy for the continued manufacture of Azedra, coordination with other organizations that may assist in the development of a strategy, patient education and communication and, more generally, addressing policy and political possibilities for protecting medical options for those with rare diseases.
are there other options?
Information on non-surgical treatments for pheo para can be found in our education pages devoted to each tumor type:
When considering any non-surgical treatment plan with your doctor, you may find the following resources useful: