Bessie Lewis

Bessie Yang Lewis’ pheo para journey began when her husband Scott was diagnosed with metastatic paraganglioma in March 2021. She was his caregiver over the next 14 months as he underwent numerous treatments including orthopedic surgeries, radiation, chemotherapy, and nuclear medicine. Scott passed away in May 2022 at the age of 45. Based on her experiences, Bessie has a strong interest in advocating for patients and caregivers fighting rare diseases. She writes about her grief journey at

Bessie holds a Master’s degree in Computer Science and a Bachelor’s degree in Computer Engineering, both from the Georgia Institute of Technology. She is interested in how artificial intelligence (AI) can be used to improve diagnostics and treatments for rare diseases.