join the conversation
Welcome to the Pheo Para Alliance Community Forum! Though pheochromocytoma and paraganglioma are rare diseases, together we are a strong, supportive community. Join the conversation: ask questions, learn, share your experiences, and realize that you’re not alone.
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a few ground rules
together we are strong
This site was developed so that you can share your experiences, insights, and stories; ask questions; and learn from others who have had similar experiences.
PLEASE NOTE: THIS FORUM HAS JUST LAUNCHED, AND WE ARE SEEKING COMMUNITY FORUM MODERATORS. PLEASE EMAIL STEPHANIE@PHEOPARA.ORG IF YOU ARE INTERESTED IN BEING A VOLUNTEER MODERATOR. WE WILL GIVE YOU ALL THE TOOLS YOU NEED TO PROVIDE PEER SUPPORT TO THE PATIENT COMMUNITY.
Join conversations in the forums, or to start your own discussion. Post a quick hello introducing yourself and get started.
Please be considerate of all posters on this forum. We are a diverse community of people. Everyone is welcome and has the right to participate. You may not always agree with another person’s opinion or everything that you read, but please be respectful and polite in any posts you make.
Sharing personal experiences is encouraged, but everyone’s experience with pheo and para is unique. What works for one person may not work for another. For medical concerns, always speak to your primary healthcare physician or provider. The Pheo Para Alliance does not endorse the suggestions found on the community forum unless noted as certified content from the organization.
Follow the rules:
Search our glossary if you see a term you don’t understand