Aimee Powell rejoined the Pheo Para Alliance in May of 2022, and has been actively involved in the pheo/para community since her late mother’s paraganglioma diagnosis in February of 2014. Health issues experienced by generations of family members suggested the presence of an inherited syndrome, a suspicion confirmed later that year by genetic testing. Following the death of her brother John in 2015, she formed the Pheo Para Project to help amplify the message and reach of other organizations working to support pheo/para patients and researchers, and joined the board of directors for the Pheo Para Troopers the following year.
Aimee has worked in an administrative capacity with nonprofits since 2005, and has been a professional communicator for over 25 years. She has served as the Pheo Para Troopers Interim Executive Director, the Executive Director of the Pheo Para Alliance immediately following its merger with the Pheo Para Troopers, and as a member of the board of directors for SDH-Deficient Cancer Research Advocates. In addition, she sits on the Society of Nuclear Medicine and Molecular Imaging (SNMMI) Patient Advisory Board, and volunteers with the Los Angeles Carcinoid Neuroendocrine Tumor Society (LACNETS) as a NETConnect Mentor.
Aimee lives in Ventura, California, with her son and her border collie, Roxie.