A diagnosis of pheochromocytoma or paraganglioma (PPGL) can feel isolating and overwhelming, but you are not alone.
Every Pheo Para Care Kit includes Phearless™, a zebra stuffed animal created by patient volunteer Karen Horton as a symbol of courage and community. Phearless™ is here to walk beside every newly diagnosed patient from day one.
If you or a loved one has received a PPGL or related genetic mutation diagnosis within the past six months, we will mail you a Pheo Para Alliance (PPA) PPGL Newly Diagnosed Care Kit, a carefully assembled package that includes:
• Trusted educational resources on pheochromocytoma and paraganglioma
• Information about PPA’s patient and caregiver support programs
• Phearless™ your companion zebra, created by patient volunteer Karen Horton
• Thoughtful extras to support your care and comfort (contents may vary; while supplies last)
PPA is grateful to Karen Horton for volunteering to lead the management of our PPGL Newly Diagnosed Care Kit program and to Patricia Horton for her foundational support.
Jenifer Hunt, another PPA care kit volunteer who has already been foundational in this program, has generously stepped up to lead and manage the fulfillment of this vital support program.
Ready to receive your kit? Fill out the short form below, and we’ll get one in the mail to you.
