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Webinar Series – Episode 30

Special thanks to Lantheus Progenics for making this webinar series possible.

The information presented on this webinar is for educational purposes only and should not substitute the advice of your doctor(s) and medical team because they have in depth knowledge of your medical history and current situation.

View slides from this presentation here.

Questions and timing are below.

Q 1 at 48:16 Are there subtypes of SDHB?

Q 2 at 49:16 Is it common to be the only SDHB-positive person in your immediate family?

Q 3 at 50:59 Is it common to be the first person in your family with the SDHB mutation?

Q 4 at 52:39 If you have SDHB, but no expression of the gene (all mri’s are clean, all blood work good) and has been for over 10 years, how important is it to continue surveillance?

Q 5 at 54:26 We’ve seen renal cell carcinoma, glomus jugulare and GIST in my SDHB family. Are there others to worry about?

Q 6 at 57:03 Is there a diet that’s most appropriate for SDHB carriers —with history of tumor or for those who don’t have news of tumors yet? Is diabetes common with SDHB?