special thanks to progenics for making this webinar series possible through an educational grant.
The information presented on this webinar is for educational purposes only and should not substitute the advice of your doctor(s) and medical team because they have in-depth knowledge of your medical history and current situation.
See list of questions and video timing below.
Q1 at 7:42: Are pheos and paras considered cancer?
Q2 at 9:00: What advice do you have for patients who are symptomatic, elevated metanephrines and some uptake on an MIBG scan but there isn’t an actual tumor seen?
Q3 at 13:33: Can a non-secreting non-genetic pheo or para start secreting especially if it is a glomus vagale?
Q4 at 16:30: Are there more people being diagnosed with pheo or para?
Q5 at 20:15: Do you recommend the plasma metanephrine test more than the 24-hour urine test?
Q6 at 23:25: What do we know about the percentage of recurrence after a surgery?
Q7 at 26:15: Can you give us a brief overview of some new treatments?
Q8 at 31:57: For patients that have had a heck/neck paraglioma post-surgery and they are worried about their vocal chords. What is available for them?
Q9 at 35:37: For a patient who is trying to decide whether or not they should have their pheo or para removed. The doc feels like they can effectively remove it, what should they do?
Q10 at 39:00: For pregnant patients, when should surgery be done, how long after deliver, are there guidelines available for pregnant patients?
Q11 at 42:12: Is there a connection between the FH mutation and pheo para?
Q12 at 44:03: What are screening recommendations for children and adults?
Q13 at 47:59: What are the determinants that might predict a GIST or pheo para with SDHx?
Q14 at 50:50: Is it possible to be positive for a genetic mutation then test again and not have a genetic mutation?
Q15 at 54:20: Can you discuss autonomic dysfunction after surgery?
Q16 at 55:50: How do we prepare for the different scans?
Q17 at 57:45: Can you prevent a pheo para crisis? Are small and large tumors equally likely to put a patient into pheo para crisis?
Q18 at 1:03:12: Is it helpful to take Vitamin C for pheo para patients?
Q19 at 1:08:13: 30-year old with SDHD with multiple neck paras taking sandostatin with no growth for the past few years. Doctor wants to stop sandostatin, can you please provide comment?