Please see the conference agenda below.
Register for the livestream here.
TO RECEIVE CME CREDIT: AFTER THE CONFERENCE, PLEASE FILL OUT THIS FORM www.pheopara.org/cmeform BY 6/11/19.
For those attending in-person:
- The conference will take place at Upstate Biotech Accelerator, 841 East Fayette Street, Syracuse, NY 13210. If you are driving, parking is available at the venue.
- If you are staying at the Crowne Plaza and Parkview Hotels, we will provide a shuttle to/from the Upstate Biotech Accelerator which is .3 miles away. Shuttle details are here.
- You can ask questions to presenters in-person at the conference, or submit your questions beforehand at facebook.com/pheopara via messenger.
- Breakfast and lunch will be served at the event on Friday and Saturday. A mixer with light appetizers is scheduled for Friday night in the Horizons room at the Crowne Plaza Hotel at 6 pm.
- The event will be webcast and we will be taking pictures during the conference. At registration, you will be asked to sign a photo/media release consent form.
For those attending via livestream:
- Please register for the livestream here.
- You can ask questions at facebook.com/pheopara via messenger beforehand or during the conference. If possible, it is best to send your questions in advance.
Thursday, June 6
Crowne Plaza Hotel (top floor dining room)
701 East Genesee Street
Syracuse, NY 13210
6pm-9pm
Grand Rounds, Dr. Pacak & Dr. Bratslavsky (open only to healthcare professionals)
• 6pm-7:30pm Dinner
• 7:30-9:00pm Lecture/questions
Friday, June 7
Upstate Biotech Accelerator
841 East Fayette Street
Syracuse, NY 13210
7:30-8:30am
Registration and Breakfast
8:30-8:55am
Welcome, Opening Remarks, Agenda Overview
9:00-9:30am
State of the Art PPGL Developments (Dr. Karel Pacak)
9:30-9:50am
Questions (Pacak)
9:50-10:10am
PPGL: What every Endocrinologist (and Physician) Needs to Know (Dr. Ruban Dhaliwal)
• What are PPGLs
• Epidemiology
10:10-10:30am
PPGL Diagnostics (Dr. Lauren Fishbein)
• Biochemical testing (making the diagnosis, chromogranin A?)
• Imaging studies (use of anatomic and functional imaging)
• Tissue sampling (Why no biopsy? IHC for diagnosis? Tissue mass spec)
10:30-10:45am
Questions (Dhaliwal & Fishbein)
10:45-11:00am
Break
11:00-11:20am
Genetic Implications for PPGL (Dr. Justin Annes)
• Who should have genetic testing
• How is genetic information useful for risks and prognosis
• How should genetics be used to guide management
11:20-11:40am
Pediatric PPGL (Dr. Jonathan Riddell)
11:40-12:00pm
Questions (Annes & Riddell)
12:00-1:00pm
Lunch
1:00-1:20pm
Surgical Approaches for PPGL (Dr. Gennady Bratslavsky)
• Perioperative medical management and imaging
• Surgical recommendations (i.e., adrenalectomy, open resection, partial adrenalectomy)
• Debulking for advanced disease (not curative but helpful)
1:20-1:40pm
Non-Surgical Approaches for PPGL (Dr. Joseph Dillon)
• Local therapy (resection, radiation, radio-frequency ablation, transarterial embolism)
• Systemic therapy (radionuclide therapy [MIBG and radiolabeled somatostatin analogs (PRRT)], ocetreotide, cytoxic chemotherapy, molecular targeted therapy)
1:40-1:55pm
Questions (Bratslavsky & Dillon)
1:55-2:15pm
Malignant Non-adrenal Paraganglioma (mPara) and Adrenal Pheochromocytoma (mPheo) a Comparative Comprehensive Genomic Profiling Study (Dr. Jeffery Ross) Non-CME
2:15-2:30pm
Differences between Paragangliomas and Pheochromocytomas in malignant potential, in 80 Japanese patients (Dr. Shoichiro Ohta)
2:30-2:45pm
Questions (Ross and Ohta) Non-CME
2:45-3:15pm
Break
3:15-4:15pm
Expert Panel (Drs. Justin Annes, Gennedy Bratslavsky, Joseph Dillon, Lauren Fishbein, Karel Pacak)
4:15 – 4:30pm
Wrap Up
6:00pm-8pm
Mixer at Crowne Plaza (top floor dining room)
Optional
Saturday June 8, 2019
Upstate Biotech Accelerator
7:30-8:30am
Breakfast and Networking
8:30-8:50am
PPGL Research: What’s on the Horizon (Dr. Rory Clifton-Bligh)
8:50-9:00am
Questions (Clifton-Bligh)
9:00-9:20am
Wellness For the PPGL Patient (Dr. Kaushal Nanavati)
9:20-9:30am
Questions (Nanavati)
9:30-9:50am
Tips from the Nurse Navigator (Bonnie Bennett, BSN RN, University of Pennsylvania)
9:50-10:05am
Questions (Bennett)
10:05-10:35am
Break
10:35-11:15am
Patient Stories and Panel (Jenny Rowen, Jake Griffiths & Linda Rose-Krasnor)
11:15-11:45
Questions (Panel)
11:45-12:05am
Caregiver Presentation: Everchanging Role of Parent/Advocate/Caregiver (Anne Licker)
12:05-12:15
Questions (Anne Licker)
12:15-12:30pm
Closing remarks
Box lunch to go
Hotel Blocks:
Crowne Plaza Syracuse:
SUNY Upstate Cancer Center Group code: UCC
Or call 315-479-7000 and request the SUNY Upstate Cancer Center room block
Rate: $125.00/night (includes parking)
Parkview Hotel:
https://www.bestwestern.com/en_US/book/hotel-rooms.33182.html?groupId=3V9VD8D1
Or call 315-701-2600 and ask for the Pheo Para Alliance room block
Rate: $125.00/night (includes parking)
* Complimentary Wi-Fi
* Complimentary Hot Breakfast
CME Credits:
CME credits will be offered at this conference.
Live stream information:
Friday June 7th Livestream Link – https://livestream.com/accounts/25025579/events/8624849
Saturday June 8th Livestream Link – https://livestream.com/accounts/25025579/events/8624856
About Syracuse: http://www.upstate.edu/com/about/campuses/activities_syracuse.php
Speakers:
Karel Pacak, MD, PhD, DSc
Senior Investigator, Section on Medical Neuroendocrinology, NICHD, NIH
Gennedy Bratslavsky, MD
Professor and Chair of Urology, Upstate Medical Hospital
Division Chief of Urologic Oncology
Justin Annes, MD, PhD
Endocrine Oncology Cancer Care Program,
Head of Pheochromocytoma / Paraganglioma Program
Assistant Professor of Medicine, Division of Endocrinology
Stanford University
Bonnie Bennett, BSN RN
Nurse Coordinator, Neuroendocrine Tumor Treatment Program, University of Pennsylvania
Roderick Clifton-Bligh, BSC (med) MB BS (hons) FRACP PhD FFSc (RCPA) Head of Department of Endocrinology, Royal North Shore Hospital
Conjoint Associate Professor in Medicine, University of Sydney
Ruban Dhaliwal, MD, MPH
Assistant Professor of Medicine, Upstate Medical University
Division of Endocrinology, Diabetes and Metabolism
Joseph Dillon, MB, BCh, BAO
Associate Professor of Endocrinology, Associate Director of the Neuroendocrine Tumor Clinic, University of Iowa
Lauren Fishbein, MD, PhD, MTR
Assistant Professor in Medicine, University of Colorado School of Medicine, Division of Endocrinology, Metabolism and Diabetes
Division of Biomedical Informatics and Personalized Medicine
Kaushal Nanavati, MD
Assistant Professor of Family Medicine, Medical Director of Integrative Therapy, Upstate Medical University
Shoichiro Ohta, MD PhD
Professor, School of Nursing, Fukushima Medical University, Japan
Jonathan Riddell, MD
Assistant Professor of Urology, Upstate Medical University
Jeffrey Ross, MD
Assistant Professor of Pathology, Upstate Medical University
Links to host organizations:
Pheo Para Alliance www.pheopara.org
Upstate Medical University http://www.upstate.edu
Upstate Medical University-Department of Urology
http://www.upstate.edu/urology/education/index.php
Upstate Cancer Center: http://www.upstate.edu/cancer/
Accreditation – This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of SUNY Upstate Medical University and Pheo Para Alliance. SUNY Upstate Medical University is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.
Credit Designation – SUNY Upstate Medical University designates this live activity for a maximum of 10.5 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
Disclosure Policy – To ensure balance, independence, objectivity and scientific rigor in all certified CME activity SUNY Upstate Medical University requires that all planners, faculty and individuals in a position to control content of an educational activity disclose all relevant financial relationships in any amount with commercial interest that might be perceived as a real or apparent conflict of interest. Detailed disclosures will be made in writing prior to speaker presentations.
Americans with Disabilities – In accordance with the Americans with Disabilities Act, SUNY Upstate Medical University seeks to make this program accessible to all. If you are a qualified individual with a disability and need a reasonable accommodation to participate equally in this program, please contact the SUNY Upstate Civil Rights Coordinator at 315-720-8157 or the Continuing Medical Education office at 315-464-4600 for assistance