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News + events / Latest News / April 2023 Newsletter

Latest News, Newsletter

April 2023 Newsletter

Check out our April newsletter here!

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SCOPPE Survey Results

Posted on 2nd June 2023

Band, New Found Glory Donates $30,000 to Pheo Para Alliance Mission

Posted on 2nd June 2023

events:

June Monthly Peer Support Meeting
SNMMI Annual Patient Education Day
July Monthly Peer Support Meeting
Educational Webinar Series – Five Years Since Azedra FDA Approval: What Have We Learned?

let’s stay in touch!

Stay up to date with the latest research and news, events we are hosting, and other organizations that we are participating with as we move forward to find a cure!