Awareness Week

Click here to access this year’s toolkit where you can register for the Awareness Week events and learn more on how to participate!

The Pheo Para Alliance is holding its 7th Annual Awareness Week to raise awareness for pheochromocytoma and paraganglioma from August 24th-28th, 2026. This year’s theme is “The Adrenaline Circuit”.

Pheochromocytoma and paraganglioma (PPGL) can affect far more than one organ or one moment in a person’s life. From the search for a diagnosis to surgery and treatment, genetics, research, lifelong surveillance, and the uncertainty of what comes next, living with pheo or para can feel like navigating a complicated circuit.

This Awareness Week, we’re connecting the pieces. The Adrenaline Circuit brings together patients, caregivers, clinicians, researchers, and advocates from around the world for five days of education, conversation, and connection.

Throughout the week, we’ll explore some of the questions our community faces every day:

What should I know before PPGL surgery?
Could a clinical trial or research study be an option for me?
What happens when a genetic result changes?
What does life look like after treatment when surveillance continues?
How can I take a more active role in navigating my care?

You’ll hear from PPGL experts, researchers, patients, and caregivers through webinars, panel discussions, lived experiences, and conversations designed to make complex information easier to understand and use.

Because awareness isn’t only about knowing that pheochromocytoma and paraganglioma exist. It’s about helping people recognize them. Helping patients find knowledgeable care. Making research easier to understand and access. Giving patients and families the information they need to ask questions and make informed decisions. And connecting a rare, geographically scattered community so no one has to navigate PPGL alone.