Latest News

Research Rookie

Edition 1

Research Rookies is an ongoing article series designed to help patients and caregivers understand the research that is being done to find answers to questions about pheo para.  It’s written in easy-to-understand language focused on making us all better patient and caregiver advocates and providing much-needed hope to those affected. We also provide links to resources where you can find more information about these research topics.

Written by Paula Długosz, PhD, Caregiver

Words such as DNA, protein, gene sequencing and organoids are often used to explain how researchers are working to find answers. Yes, DNA, that part of our bodies that makes us all unique and is shaped like fusilli pasta.  We sometimes have an idea what these words mean, but when they are all used together, it can be confusing, like mixing fusilli with bowtie pasta!

Check out our first post here!