End-of-Year Giving

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December 2-31, 2025

January 2026 Peer Support Meeting

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Peer Support

1 on 1 and monthly peer support meetings

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Belzutifan Statement

FDA Approves Belzutifan for Pheochromocytoma & Paraganglioma
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Pheo Para Alliance

NEWS + EVENTS

keeping you up to date

Watch the Recording for Education Webinar Series – 6th Annual Fireside Chat

Help Us Reach Every Newly Diagnosed Patient

A LITESPARK in the dark: New targeted treatment for advanced pheochromocytoma and paraganglioma

PPA Wecomes a New Executive Director

Featuring Leslie Coffin for INCA’s 2025 Global NET Cancer Day Campaign

Watch the Recording for Education Webinar Series – Belzutifan Webinar

Stanford Center of Excellence Program Featured

Samantha Greenberg, PhD, MS, MPH, CGC, Joins Research Advisory Board

Stephanie Alband Leaving PPA

Patient Education Webinar: Belzutifan

Hundreds Attend JP’s Backyard Ultra/Hike to Benefit PPA

PPA Hosts Patient Conference in Montreal

Learn

what is pheo para?

HOPE.COMMUNITY.PPA

Pheochromocytoma is commonly referred to as

“the great mimic”

because its symptoms are often mistaken for other conditions.

2%


of patients found to have adrenal masses incidentally are diagnosed with pheochromocytoma

The incidence of pheochromocytoma is


1 in 3,000

patients will be diagnosed with a pheo para


<1%

Less than 1% of high blood pressure cases are due to pheochromocytoma


given these statistics, it is considered a rare disease.

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Your donation assists the Alliance as we work to support the pheo/para community through education, research, advocacy, and a global community of support.

Patient Support Services

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FEATURED STORIES

people who inspire

Albandari

November 2023 marked a pivotal moment in my life. I was on a business trip in Paris, where the stress of work weighed heavily on my shoulders. On November 13th, my birthday, I returned to Riyadh, eager…

Paul

Looking back, my symptoms started as early as age 10. I lived in a heightened state of anxiety, and every day stresses seemed to be getting gradually more unmanageable. I didn’t know what was normal, so I…

Rod

Well, my story starts by an accident (literally). I fell off a roof and ended up having an x-ray, where a keen-eyed consultant noticed something other than broken bones during a CT scan. A few days later,…

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