My name is Lacey Koelling and my journey with PPA began in 2018 when I was diagnosed with bilateral carotid body tumors. At the time, I was introduced to the Paratroopers by my genetic counselor. From 2018-2023, I believed my lifetime of monitoring my paras was all this diagnosis would bring me. In 2023 when I received the news I was metastatic, the PPA became a refugee of information and support for me. Over the past year and a half, I have increased my involvement with other patients and researched ways to contribute to the education and research of pheo para through the PPA. This has led me to seek a greater, more involved role in supporting the community which led me to become a member of the board. I am interested in being an advocate for patients and research for treatment options.
Lacey Koelling
