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Pheochromocytoma (pheo) and paraganglioma (para) are rare neuroendocrine tumors.

Paras form along the sympathetic and parasympathetic nervous system.

Pheos form in the adrenal glands on top of the kidneys.

A recent survey indicated that 35% of patients received a diagnosis after 4+ years.  20% suffered for 8+ years with no answers.

Approximately 40% of pheos are hereditary.

2-8 people per million are diagnosed every year. Recent research has suggested it is more common.

Approximately 15-25% of pheo para cases are metastatic.

Pheo para patients require lifelong monitoring.

Over a dozen symptoms are associated with pheo para. Distinguishing it from more common conditions can be a challenge.