Events

Pheo Para Awareness Week

We are Pheo Para Phearless!

August 23-29, 2020

Join us as we hold this 1st annual week-long campaign dedicated to raising awareness for pheochromocytoma and paraganglioma!
PRESS RELEASE

Check out our Awareness Week videos featuring patients and caregivers!


Toolkit
Help us make the Inaugural Pheo Para Awareness Week a huge success!  You can participate all week long by utilizing the tools below.
Don’t forget to tag us @pheopara and use the hashtags: #pheoparaphearless #(your state or country)
  1. Social Media Cover, Announcement Post & Facebook Profile Frame – share these posts to your preferred social media.
  2. Tell Your Story – if you have already shared, then give an update!
  3. Pheo Para Statistics – use one of the infographics to share a stat about the illness. Click here for Facebook, Twitter or Instagram posts.
  4. Walk a Mile in My Shoes Memes – share these memes to help explain what having pheo para is like. Click here for Facebook, Twitter or Instagram posts.
  5. Printable Signage – download it, print it out, take a pic and share. DOWNLOAD ON LAPTOP:  Click on the hyperlink(s) below, then when the image pops up right-click, then save. DOWNLOAD ON DEVICE/PHONE: Hold your thumb on the hyperlink, then Open in New Tab, then save image to your photos.
  6. Zoom Background – Use the Zoom background below to raise awareness during your work or school meetings. DOWNLOAD ON LAPTOP:  Click on the hyperlink(s) below, then when the image pops up right-click, then save. DOWNLOAD ON DEVICE/PHONE: Hold your thumb on the hyperlink, then Open in New Tab, then save image to your photos.
  7. Compilation Videos – Share the compilation videos we release on social every day during Awareness Week.

Objectives of this campaign:
1. Inspire & empower pheo para constituents to tell their story.
2. Raise awareness of the illness among health care providers.
3. Educate pheo para patients and caregivers on the illness.
4. Build understanding amongst constituents of the struggles of pheo para patients

Join us for our Planning Calls every two weeks on Thursday at 12PT/3ET.  Register here!  If you can’t make these calls, but want to be involved, send us an email at info@pheopara.org.

Thank you to everyone for participating in this very important inaugural event. We are #strongerunited and #pheoparaphearless!  Don’t hesitate to reach out with questions or suggestions to info@pheopara.org.

Warmest Regards,

Your Pheo Para Phamily

Special thanks to our Presenting Sponsor.