Sara is from Edmonton, Alberta, Canada and she is a patient living with metastatic pheochromocytoma. She is currently on the Welireg clinical trial for the drug called Belzutifan.
She has her Master’s degree in Urban and Regional planning and prior to the discovery of my first pheochromocytoma, she worked in planning for over 25 years in both the public and private sectors.
She now dedicates lots of her time to CNETS as a Member of the Board of Directors and the pheo para community as a patient advocate. We are so happy she is joining us here today to share her wisdom and experience.