Dr. Karel Pacak, NIH
Special thanks to Progenics for making this Facebook Live Webinar possible.
See the questions asked and timing below.
This webinar makes reference to Azedra, a radiopharmaceutical therapy used to treat metastatic and unresectable pheo para. This therapy is no longer commercially available.
- 32:08 Is this disease really as rare as it is thought to be?
- 34:02 How can someone reach out to the NIH and possibly get treated?
- 35:27 For MIBG, do women who are breastfeeding need to be in isolation and if so for how long?
- 36:33 Have any new genes been found that produce an excess of red blood cell production?
- 37:40 Are anxiety and panic attacks with sweating symptoms of pheo and para?
- 39:38 Are there any over the counter medications one can take to help the drug therapies work better?
- 42:08 What are the chances of para recurrence after surgical resection?
- 44:29 Is it always stage 4 when it has spread to the bone? What is the life expectancy?
- 45:40 Is surgery an option for a pheo that hasn’t metastasized?
- 47:28 Does having a ruptured pheo increase the chances of the ruptured pieces spreading?
- 49:23 Do alpha blockers possibly make panic attacks worse?
- 50:18 Are blood-tests good enough for follow up with pheo para disease?
- 51:31 How easy is it to get CT or MRI scans?
- 52:30 Is there a place one could go to be treated with interventional radiology for a metastatic liver?
- 54:27 How long does it take blood pressure to return to normal after pheo surgery?
- 55:20 What is on the horizon for therapies for this disease?