Dr. Jaydira Del Rivero, National Cancer Institute
You can view slides from this webinar here and here.
Questions and timing are below.
The information presented on this webinar is for educational purposes only and should not substitute the advice of your doctor(s) and medical team because they have in depth knowledge of your medical history and current situation.
Q 1 at 1:03:30 Can overseas patients take part in clinical trials conducted in the US? Can you tell us about what trials are recruiting in Europe and other areas?
Q 2 at 1:08:16 “My oncologist has referred me fore a trial that is not specific to pheo para and requires periodic biopsies. What are your opinions about trials that are not specific to paraganglioma and/or have ongoing biopsies as a part of the protocol?”
Q 3 at 1:11:57 “Are there any vaccines in clinical trial to prevent pheo para for people who are prone to develop it due to a genetic mutation?”
Q 4 at 1:12:41 “Are there any trials for metastasized pheochromocytoma which do not react on FDG, MIBG or GA-68 DOTATATE scans?”
Q 5 at 1:14:15 “Metastatic pheo, post CVD and post PRRT x1, in lymph nodes, chest and abdomen. Doctor wants to biopsy to redo genome — is there a clinical trial that may be appropriate?”
Q 6 at 1:17:05 “I’m a carrier of a genetic mutation associated with pheo para, but have not developed tumors. Are there any observational studies that I might be eligible for?”
A 7 at1:18:19 “Where can persons who don’t live in the United States find more information about how to participate in a US-based clinical trial?”