NET Cancers are frequently misdiagnosed and early detection is key. 58% of patients have advanced stage neuroendocrine cancer by the time they are correctly diagnosed, as shown in the Global NET Patient Survey – a collaborative effort of INCA and Novartis. There is currently no cure for the majority of patients. Frequently misdiagnosed with conditions such as: anxiety, menopause, Irritable Bowel Syndrome (IBS), asthma or diabetes, NETs require greater awareness amongst the community and medical professions.
Raising awareness about NETs with the public and medical community is a key goal for INCA and its members around the world, and NET Cancer Day offers a platform to speak in a united and stronger voice.
World NET Cancer Day is coordinated by the International Neuroendocrine Cancer Alliance (INCA). INCA is the global voice for patients with neuroendocrine cancer and genetic neuroendocrine tumors (NETs) and their careers with a mission to: raise awareness about all types of NETs; push for scientific advancements with a focus on identified unmet needs; and to provide a platform for global collaboration to address the many challenges NET patients and the medical community face, in securing a timely diagnosis and accessing optimal treatment, support and care.
INCA represents 28 member organizations from 23 countries located around the globe. Pheo Para Alliance is a member organization.