Tell Your Story

Many enjoy and find comfort in reading about other’s pheo para journey, and we would love to hear your story. Whether you are a patient, caregiver, family member or friend, please share by filling out the form below. Or, you can send us a video of less than five minutes via dropbox to Your story may be profiled during our Pheo Para Phridays on social media. Every Friday, we feature a courageous pheo para trooper’s story.

By filling out this form you give Pheo Para Alliance permission to share your story with your first name on social media,, and via email communications. Your story may be edited. When telling your story, please avoid mentioning doctors or healthcare facilities by name. Please note that, while we do our best to feature as many patient stories as possible, we may sometimes have a backlog of stories to feature.

Disclaimer: Personal stories are shared solely for peer support purposes. It is not the intention of the Pheo Para Alliance to dispense medical advice or a potential course of treatment. Anyone seeking medical advice should contact their physician.

  • People who read patient stories on social media often like to comment and send words of encouragement to the person who is profiled. Is it ok to tag you on social media? If so, we ask that you acknowledge those that have commented.
  • In 3-4 paragraphs, please share your pheo para journey. It can be from diagnosis through to present day, or it can be whatever is on your mind right now as it relates to your diagnosis.
  • Accepted file types: jpg, jpeg, png, gif.
  • Accepted file types: jpg, jpeg, png, gif.
  • This field is for validation purposes and should be left unchanged.