Amanda was diagnosed with SDHB malignant paraganglioma in 2008, aged 18. In 2013 it metastasized to her bones and shortly thereafter her family founded the Paradifference Foundation with the aim to fund research within the field of paraganglioma and pheocromocytoma. She is currently living in London with her husband and two young children. Alongside her work with the Paradifference Foundation she works as Chairman and Vice President for Blaklader Workwear.
Amanda Düsing
