Rare Caregiver Respite Program

The National Organization for Rare Disorders (NORD)Ⓡ, facilitates the Rare Caregiver Respite Program, aimed at providing caregivers of rare disease patients a much-needed respite.  Through the program, NORD provides financial assistance to eligible caregivers covering up to $500 annually so that a respite caregiver may be secured to care for a loved one. Potential applicants can reach out to NORD to ascertain if they meet eligibility requirements.  Examples of what the NORD Rare Caregiver Respite Care Program financial assistance may cover include: Registered Nurse (RN) care, Licensed Practical Nurse (LPN) care, Certified Nursing Assistant (CNA) / Nursing Assistant or Home Health Aide (HHA).  For more information contact 203.616.4328 or caregiverrespite@rarediseases.org.