Speakers
- Dr. Jaydira del Rivero, M.D., Physician Scientist, National Institutes of Health, National Cancer Institute, Developmental Therapeutics Branch, and member of the Medical Advisory Board of the Pheo Para Alliance
- Dr. Hussam Alkaissi, M.D., PhD, Physician Scientist, National Institutes of Health, National Cancer Institute, Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
- Dr. Camilo Jimenez, Tenured Professor of Endocrine Neoplasia and Hormonal Disorders at the University of Texas MD Anderson Cancer Center, and member of the Medical Advisory Board of the Pheo Para Alliance
- Dr. Michael Glover, M.D. Assistant Professor, Genitourinary Medical Oncology, The University of Texas MD Anderson Cancer Center, Houston, Texas
- Dr. Vivek K. Narayan, MD, MS, Associate Professor of Medicine (Hematology-Oncology) at the Hospital of the University of Pennsylvania.
- Dr. Patricia Dahia, MD, PhD, Professor of Medicine at the University of Texas Health Science Center at San Antonio (UTHSCSA) and the Mays Cancer Center at UTHSCSA, Robert Tucker Hayes Distinguished Chair in Oncology, and member of the Medical Advisory Board of the Pheo Para Alliance
Summary
What if you could be part of what changes the future of PPGL? Research needs patients, and patients need research. Research is driving new discoveries in pheochromocytoma and paraganglioma (PPGL)—from understanding the biology of these rare tumors to developing new treatments and improving patient care. This session will provide an accessible look at current research and opportunities for patients and families to participate. Experts will explore clinical trials, observational studies, and other research opportunities, explaining what these studies are designed to learn, who may be eligible, what participation may involve, and what questions patients should ask before deciding to participate. Most importantly, you’ll learn how participating in research can help advance knowledge, accelerate progress, and improve the future for the entire PPGL community. Whether you are considering participating in a study now or simply want to understand what’s happening in PPGL research, this session will help you discover how you can be part of the breakthrough.
Learning Objectives
By the end of this session, participants will be able to:
- Describe the different types of PPGL research, including clinical trials and observational studies, and understand what each is designed to accomplish.
- Identify current and emerging research opportunities in PPGL and the types of questions researchers are working to answer.
- Explain what patients can expect when participating in a clinical trial or observational study, including eligibility, potential benefits, risks, and time commitments.
- Recognize key questions to ask their healthcare team and study investigators when considering participation in research.
- Identify reliable resources for finding PPGL clinical trials, observational studies, and other research opportunities.
- Understand how patient participation in research can help accelerate discoveries and improve the future of PPGL diagnosis, treatment, and care.
Thank you to our sponsor, Jazz Pharmaceuticals! 