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Agenda
8:00 Welcome & Breakfast
Linda Rose-Krasnor and Sara Spearey
8:15 Intro to Pheo Para
Isabelle Bourdeau
8:35 Genetics
Justin Annes
8:55 Diagnosis & Imaging
Shereen Ezzat
9:15 Patient Engagement in Research – A Panel Discussion
Moderated by Lauren Fishbein
Panelists –
Rory Clifton-Bligh, Clinician Scientist
Amanda Düsing, Paradifference Foundation
Linda Rose-Krasnor, Pheo Para Alliance
Dean Ruether, Clinician Scientist
9:40 Surgical Treatment
Head and Neck – Luke Buchmann
Adrenal – Jesse Pasternak
10:05 Q&A
10:25 Break
10:45 Non-Surgical Treatment & Metastatic Disease
Radioligand/Chemotherapy/Targeted Therapy – Camilo Jimenez
Radiosurgery/Head & Neck – Erqi Pollom
11:10 Patient Story A Decade From Diagnosis With Metastatic Pheo
Miranda Edwards
11:25 Clinical Trials
Jaydi DelRivero
Sara Spearey, the Patient Perspective
11:40 What’s on the Research Horizon (Recap of International Symposium on Pheochromocytoma Research Presented)
Karel Pacak
12:00 Q&A
12:20 Closing
Stephanie Alband
12:30-2:00 Peer Support & Networking Meeting (Lunch included)
Genna Rod