Tuesday, December 15, 2026 12:00–1:30 p.m. EST (17:00–18:30 UTC)
Join the Pheo Para Alliance for an engaging 90-minute conversation with Dr. Karel Pacak, MD, PhD, DSc, whose decades of groundbreaking research, clinical care, and international leadership have advanced the understanding, diagnosis, and treatment of these rare neuroendocrine tumors.
Moderated by the Executive Director of the Pheo Para Alliance, this annual patient-centered discussion brings expert insights into an approachable setting where the questions and experiences of patients and caregivers take center stage.
What we’ll discuss
Genetics and genetic testing: Hereditary and sporadic disease, genetic findings, implications for families, and how results can inform care.
Diagnosis and workup: Biochemical testing, imaging, tumor characteristics, and the importance of a thorough evaluation.
Treatment options and emerging advances: Surgery, medications, radionuclide therapies, and individualized approaches to localized, recurrent, or metastatic disease.
Living well with pheo/para: Long-term surveillance, symptom management, self-advocacy, and quality of life.
Whether you are newly diagnosed, navigating treatment, living with hereditary risk, or supporting someone you love, this conversation is designed to help you feel better informed and more confident when speaking with your healthcare team. You can help shape the conversation. Submit your questions when you register.
Register Here: https://us02web.zoom.us/webinar/register/WN_wvfDzKpTQmG9tEqXTZeT-A
About Dr. Karel Pacak, MD, PhD, DSc
Dr. Pacak is a board-certified endocrinologist and internationally recognized expert in neuroendocrine tumors, especially pheochromocytoma and paraganglioma. In 1998, he established the Program for Neuroendocrine Tumors at the National Institutes of Health (NIH), focused on pheo/para. He holds a lifetime professorship in Internal Medicine at Charles University in Prague and currently serves as Medical Director of the Center for Adrenal Endocrine Tumors at Akeso Hospital in Prague, Czech Republic.
He established the International Symposia on Pheochromocytoma and helped co-found the Asian Alliance for the Study of Neuroendocrine Tumors. His scholarly contributions include more than 305 peer-reviewed scientific articles, 98 book chapters, and five books. His many honors include the NIH Director’s Mentor Award, the NICHD Director’s Award of Merit, the Pheo Para Alliance Award for Cure, and the Jessenius Gold Medal from the Slovak Academy of Sciences.
Within the Pheo Para Alliance, Dr. Pacak serves as Chair of the Medical Advisory Board, a member of the Board of Directors, and Co-Principal Investigator of the Research & Registry Advisory Board. Beyond his scientific achievements, patients value his willingness to engage with their questions and connect complex medical knowledge to the real decisions and uncertainties of living with pheo/para.
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