hope. community. ppa.

Special thanks to Jazmyn and her mom for sharing their SDHB paraganglioma journey, and to INCA for creating this video as part of their broader effort to raise awareness about neuroendocrine cancer.

Most people never forget the first time they were told they had cancer. In April 2001, when I was 25 years old, I had that experience. I was in my office at school and received a call…

This is Olivia, my fearless 7 year old daughter. Our happy, sweet, gymnast full of life. In January of this year I brought her to our local children’s emergency room with the fear she was having appendicitis-…

Throughout this journey, I realized that the doctors I encountered didn’t have much experience dealing with my condition, which added to the challenges I faced. My life took a complete 180-degree turn since then. My goals and…

My name is Kristi Eder. In two weeks I will be 45, but I am loving 44 right now. Here I will sit and tell my story. My story starts very normally. I was born, I had…

Looking back to 1995, it becomes more and more clear that I had been suffering from pheo symptoms for more than 12 years without knowing it. Knowing what I know now explains nearly all of the anxiety,…