Stephanie Alband, MSBA, joined Pheo Para Alliance in March of 2019. She has over 20 years of experience in the nonprofit industry, with ten years working exclusively for rare disease organizations, including the Huntington’s Disease Society of America and Angioma Alliance. Her experience with her daughter’s rare cancer has helped her better understand and successfully navigate the unique challenges faced by the rare disease community. She currently serves as a Member of the Board of Directors for the International Neuroendocrine Cancer Alliance (INCA).
She lives in San Diego county with her husband and two girls. She enjoys hiking and the outdoors.