partner organizations

our network

NORD: National Organization for Rare Disorders

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NETRF: Neuroendocrine Tumor Research Foundation (formerly Caring for Carcinoid)

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NANETS: North American Neuroendocrine Society

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NET Cancer Day

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VHL Alliance

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Global Genes

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AMEND: Association for Multiple Endocrine Neoplasia Disorders

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Pheochromocytoma Support Group

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Yuku Pheochromocytoma Support Board

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NET Patient Foundation (U.K.)

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CommNETS: Commonwealth Neuroendocrine Tumour Collaboration (Australia/Canada)

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UKINETS: UK and Ireland Neuroendocrine Tumour Society

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RDLA: Rare Disease Legislative Advocates

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PRESSOR: Pheochromocytoma and Paraganglioma Research Support Organization

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INCA: International Neuroendocrine Cancer Alliance

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Carcinoid Cancer Foundation

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Genetic Alliance

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Healing Net Foundation

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SDHB Pheo-Para Coalition

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Paradifference Foundation (Sweden)

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ENETS: European Neuroendocrine Tumor Society

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APNETS: Asia Pacific Neuroendocrine Society

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EURORDIS: Rare Diseases Europe

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The Pheo Para Alliance would not be able to accomplish all that it does without the help of its corporate sponsors. Thanks to the following organizations for their support:

 

Resources Disclaimer

for informational purposes only.

The Pheo Para Alliance web site is meant to be used for informational purposes only. It is not the intention of the Pheo Para Alliance to dispense medical advice. Anyone seeking medical advice should contact their physician.