Applicant – University of Pennsylvania, Philadelphia, PA
You are invited to provide feedback about your experiences at the facility named above. The facility has applied to receive a designation by the Pheo Para Alliance as a Specialized Clinical Center or Center of Excellence. The Pheo Para Alliance is a patient advocacy organization whose mission is to empower patients with pheochromocytoma or paraganglioma, their families and medical professionals through advocacy, education and a global community of support, while helping to advance research that accelerates treatments and cures. The Center of Excellence Program identifies facilities where patients receive the best possible pheochromocytoma and paraganglioma care.
Feedback about the quality of your experience at this facility is an important part of reviewing this center’s application to receive a designation as a Center of Excellence.
THIS SURVEY CAN BE COMPLETED ANONYMOUSLY. TO PROTECT YOUR PRIVACY, ONLY DE-IDENTIFIED RESPONSES WILL BE SHARED WITH THE FACILITY TO ASSIST IN REVIEWING THEIR APPLICATION AND TO ELEVATE PATIENT CARE.
You may participate in this survey if you have had a medical appointment related to your diagnosis of pheochromocytoma or paraganglioma or related genetic mutation at this facility in the past 12 months.
This survey will take approximately five minutes, or more, depending on the detail you provide about your experience at the facility. Thank you for participating.