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Welcome to the Pheo Para Alliance Community Forum! Though pheochromocytoma and paraganglioma are rare diseases, together we are a strong, supportive community. Join the conversation: ask questions, learn, share your experiences, and realize that you’re not alone.
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a few ground rules

together we are strong

This site was developed so that you can share your experiences, insights, and stories; ask questions; and learn from others who have had similar experiences.



Join conversations in the forums, or to start your own discussion. Post a quick hello introducing yourself and get started.

Be respectful. 

Please be considerate of all posters on this forum. We are a diverse community of people.  Everyone is welcome and has the right to participate. You may not always agree with another person’s opinion or everything that you read, but please be respectful and polite in any posts you make.

Medical advice:

Sharing personal experiences is encouraged, but everyone’s experience with pheo and para is unique.  What works for one person may not work for another. For medical concerns, always speak to your primary healthcare physician or provider. The Pheo Para Alliance does not endorse the suggestions found on the community forum unless noted as certified content from the organization.

Follow the rules: 

By posting to community, you agree to abide by our Terms of Use and your privacy will be protected in accordance with our privacy policy. If you have any questions about the community guidelines, you can email

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community forum

terms of use

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