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Pheo Para Alliance

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INCA – Global Patient Pack

Monthly Patient Support Meeting

Monthly Patient Support Meeting

Monthly Patient Support Meeting

Monthly Patient Support Meeting

Monthly Patient Support Meeting

Monthly Patient Support Meeting

Monthly Patient Support Meeting

Monthly Patient Support Meeting

Monthly Patient Support Meeting

Monthly Patient Support Meeting

Honoring Allen Wilson for a Decade of Service to Pheo Para Community

EDUCATION

what is pheo para?

HOPE.COMMUNITY.PPA

Pheochromocytoma is commonly referred to as

“the great mimic”

because its symptoms are often mistaken for other conditions.

2%


of patients found to have adrenal masses incidentally are diagnosed with pheochromocytoma

The incidence of pheochromocytoma is


1 in 3,000

patients will be diagnosed with a pheo para


<1%

Less than 1% of high blood pressure cases are due to pheochromocytoma


given these statistics, it is considered a rare disease.

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Your donation assists the Alliance as we work to support the pheo/para community through education, research, advocacy, and a global community of support.

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FEATURED STORIES

people that inspire

Sierra’s Story

Sierra’s story begin in Febuary 2016. She was 8 years old. Out of nowhere she had no appetite, wasn’t drinking and lost about 20 lbs. Over a 6 month span, she was fussing horribly about right side…

Lauren

Ever since I was six years old, I had complained to my parents that my heart hurt. This was a daily issue, getting sent to get EKG’s constantly and every result came back normal. Doctors refused to…

Tony

My name is Tony Kipkemboi. I was born and raised in Kenya before moving to the United States for college at 19 years of age. My college was paid for through athletic scholarship (cross country & track.)…

our community is our inspiration.

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