Participate in this research study to examine the mental health impacts of delayed diagnosis and invalidation in the pheo and para patient population. More detail and link to the survey is below.
Examining the mental health impact of delayed diagnosis and invalidation in the Pheochromocytoma (PHEO) and Paraganglioma (PGL) patient population*
Link to Patient Flyer
Link to Take the Survey
Time Frame
The time frame of the study is approximately three months.
Contact Info for Researchers
See contact info on flyer.
General Inclusion Criteria
You must be 18 years or older, English speaking, and have a diagnosis of either Pheochromocytoma or Paraganglioma to participate.
Research Summary
The purpose of this study is to explore the psychological experiences associated with diagnosis and health care in the pheochromocytoma/paraganglioma patient population.
Funding Source
Research lab start-up funds from Dr. Petts Santer. Funding through the duration of the project.
Participation Obligations
Complete an online survey
Potential Benefit to Participants
There is no direct benefit to you from participating; however, it is hoped that the knowledge gained will be of benefit to others in the future and may advance our understanding of treating the pheochromocytoma/paraganglioma patient population.
*This not a Pheo Para Alliance research study. The Alliance does not endorse any particular research study and is not responsible for the accuracy of the information provided by the investigator.