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Gainesville, FL Regional Conference

October 28, 2023

Join us in person for a rare opportunity for patients to learn about the illness and connect with other patients.  Information is presented by knowledgeable local providers and world-renowned experts in pheo and para.  The agenda will cover a broad range of topics on the illness including symptoms, diagnosis, genetics, and treatment options.  All patients and caregivers are welcome. This conference will not be live streamed or recorded.

8:00 – Meet & Greet Reception/Breakfast

8:30 – Welcome – Aimee Powell, Pheo Para Alliance & Dr. Hans Ghayee, Endocrinologist, UF Health

8:40 – Keynote Speaker, Dr. Karel Pacak, NIH – Pearls & Myths in Management of Pheo Para

9:05 – Intro to Pheo – Dr. Juan Pablo Perdomo Rodriguez, Endocrinologist, UF Health

9:30 – Genetic Counseling – Lisa Brown, Genetic Counselor, UF Health

9:55 – Surgical Aspects of Pheo – Dr. Aditya Shirali, Endocrine Surgeon, UF Health

Break

10:15 – Head and Neck Paraganglioma and Surgical Options – Dr. Peter T Dziegielewski, Otolaryngology, Head and Neck Surgeon, UF Health

10:40 – Promising Treatments in Radiation Oncology – Dr. Kathryn Hitchcock, Radiation Oncologist, UF Health

11:05 – Symptoms of Pheo, Yet No Tumor – Dr. Hans Ghayee, Endocrinologist, UF Florida

11:30 – Q&A Panel With the Experts

11:55 – Closing – Jennifer Manzo, Pheo Para Alliance

12:00-1:00 – Patient Support Group

Register using this link!!

Location:
University of Florida, Clinical & Translational Sciences Institute – 2nd Floor
2004 Mowry Road (northeast corner of Mowry Road and Gale Lemerand Drive)
Campus Map Link
Parking is available in the garage next to the building and on the street (parking on campus is permitted on the weekends)