Toolkit

What is it?
Who is Involved?
How You Can Help
Social Media Assets
What's Going On?
Past Awareness Weeks
What is it?

August 22 – 26, 2022

Use the tabs to learn how you can participate on social media, tell your story, engage with others affected by attending our week-of events and fundraise for our mission!
The objectives of the week-long campaign are to:
• inspire & empower pheo para constituents to tell their story
• raise awareness of the illness among health care providers and educate patients
• create understanding of the struggles presented by the illness
2022 themes are:
#ABCsofPPGL – to educate healthcare providers and patients about the illness
#COEsofPPGL – to raise awareness about the importance of Pheo Para Centers of Excellence
#pheoparaphorever – used to underscore the need for lifelong monitoring
#pheoparaphearless – this theme is part of every Awareness Week because we always strive to be phearless.

Special thanks to:

Who is Involved?
Because we are stronger united, all pheo para friends are invited to participate.  Patients, caregivers, clinicians, researchers, industry, and medical societies all contribute to the success of the campaign.
The following dedicated and passionate committee members are involved in planning the 3rd Annual Awareness Week.
Committee members:
Layla Adrianovska, Lisa Anderson, Melanie Clement, Vincent Coonan,  Jenni Dreussi, Catherine Mazurkiewicz, Teena Price, Shonna Snyder, Saadia White
How You Can Help

Share on Social Media – One of the most important ways you can participate in Awareness Week is by sharing your story or our images and assets on your social media.  Click on the Social Media Assets link to find and share images.

Post a video or written copy and image of your story or a moment during your journey to your social media which you found significant or impactful in 100 words or less and reference one of the hashtag themes below if it calls to you.

When sharing on social, don’t forget to:
• tag us @pheopara
• use hashtags #pheoparaphearless, #pheo, #para
• use theme hashtags #pheoparaphorever, #ABCsofPPGL, #COEsofPPGL
• ask your friends and family to share on their social

Below are other engaging, fun ways to participate, and check out our virtual events found on the What’s Going On tab!

Patient Locator Map – #Youarenotalone is one of the main themes of our campaign this year. Fill out this form to share your first name, city, state, country, and social media links (optional). Everyone who fills out the form will be represented on a global map in order to unify our patients worldwide so everyone diagnosed feels supported and empowered. Patients who have shared their social media links can connect with each other.

Pheo Para Quiz – Test your pheo para knowledge.  This quiz (available in many languages!) was created to increase healthcare providers knowledge of the illness, but can be taken by anyone.  Take it, and/or share it!

Challenge to Change the World – The Challenge to Change the World encourages pheo para patients, caregivers, and allies to reach out to medical professionals in their communities with current information on the illness. Every participant pledges to personally contact one healthcare professional per month from July through December, for a total of six each. Learn more here.

Create Your Own Avatar – Make your own avatar and share on social media.  Check out this image for inspiration!

Fundraise Online
If sharing on social media isn’t your thing, you can also fundraise to support our mission online by donating on this webpage and sharing with your phriends and phamily!  You can also donate by text by sending the message ‘donatetopheo’ to 44321.  Finally, fundraise for us online via Facebook by starting your own Facebook fundraiser here!

Don’t forget to check out our shareable social media assets in the navigation bar!
Social Media Assets

Toolkit:

Social Media Statistics – Share these statistics about the illness on Twitter, Instagram & Facebook.

Sample Tweet – This week is the 3rd Annual #pheo #para Awareness Week and we are raising awareness for this rare #neuroendocrine #cancer. Learn how you can help raise awareness at www.pheopara.org/2022awarenessweek  #pheoparaphearless @PheoPara

Social Media Profile Pics – Add one of these profile pics to your Facebook, Instagram & Twitter accounts.  It’s a quick and easy way to show your support.

Campaign Video – (to be released 8/22!) which is also found on social @pheopara.

Pheo Para Healthcare Provider QuizTest your pheo para knowledge.  This quiz (available in many languages) was created to increase healthcare providers knowledge of the illness, but can be taken by anyone.  Take it, and/or share it!

Create Your Own Avatar – Make your own avatar and share on social media.  Check out this image for inspiration!

What is Pheo? Video – Download this video and share it!

What is Para? Video – Download this video and share it!

 

What's Going On?

Pheo Para Surgery Webinar – Monday, August 22, at 5pm PT/8ET.  The American Association of Endocrine Surgeons will host a webinar in honor of Awareness Week. Get your surgery questions answered live by experts. At the time of the webinar, tune in via Facebook Live here!

IDEA Panel Discussion – Tuesday, August 23, at 12:30 PT/3:30 ET. The recently launched Inclusion, Diversity, Equity and Access (IDEA) Committee will host a panel discussion about the additional challenges some in the pheo para community have experienced due to factors like age, gender, race, language and ability. Register here!

Pheo vs. Fabulous Instagram Live – Tuesday, August 23 at 4pm PT/7 ET.  Our ever-phabulous phriend Miranda Simard will be broadcasting on Instagram Live with advice on how to find and nurture your inner superhero!  Tune in here!

Mindfulness and Pheo Para – Thursday, August 25 at 9am PT/noon ET.  Joins us as we welcome Denise Dempsey, who will help us wrap up Awareness Week by teaching us to quiet the stress in our lives through mindfulness.  Denise is the author of numerous publications and books including:  Mindfulness Meditations for Stress: 100 Simple Practices to Ease Tension and Find Peace.  Includes free book giveaways!  Register here!

Past Awareness Weeks

View videos from past Awareness Weeks below!

2021 Awareness Week

Inaugural 2020 Awareness Week