Calling all pheo para phriends! Share your experiences as a pheochromocytoma or paraganglioma patient! If you are a pheo para patient or diagnosed with a related genetic condition (e.g., SDHx, NF1, VHL), we invite you to participate in a confidential, online survey of patient issues and unmet needs, being conducted by the Pheo Para Alliance.
Your participation will help identify unmet needs of patients and can help fuel research.