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Portland Conference

Join us!

June 26, 2022

Thanks to everyone who was able to attend.  Please see the slides from presenters here!


This will most likely be our only in-person event of the year.  This Education Day for patients and caregivers features world-renowned experts on various pheo para topics.

The sessions won’t be livestreamed and sessions will not be recorded.  This will most likely be the only in-person event this year!

It’s also a great opportunity to connect with other patients.  Would love to see you there!

Register below!

8:30 – Meet & Greet Reception/Breakfast
9:00 – Welcome
9:05 – Pheo Para 101 & Genetics: Lauren Fischbein (University of Colorado)
9:35 – Diagnosis & Imaging: Nadine Mallak (OHSU)
10:00 – Q&A for morning session

10:15 – Break (15 minutes)

10:30 – Surgery: Lauren Orr (Oregon Clinic)
11:00 – Medical Management of NETs and clinical trials: Jaydi del Rivero (NIH)
11:30 – MIBG and DOTATATE therapy: Erik Mittra (OHSU)
12:00 – Q&A for afternoon session
12:15 – Patient/Caregiver Presentation
12:30 – Closing remarks

12:30 – 1:30 Peer Support Meeting

Special thanks to Dr. Erik Mittra, OHSU.

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To make a donation to underwrite the costs of the conference, please fill out the form below. Thank you!


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