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News + events / Newsletter / Summer enews 2021

Newsletter

Summer enews 2021

Check out our latest enews here.

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2021 Year in Review

Posted on 16th November 2021

Winter enews 2021

Posted on 15th November 2021

events:

Monthly Patient Support Meeting
Rare Disease Day
Monthly Patient Support Meeting
Monthly Patient Support Meeting

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Stay up to date with the latest research and news, events we are hosting, and other organizations that we are participating with as we move forward to find a cure!