Stephanie Alband, MSBA, joins Pheo Para Alliance with over 20 years of experience in the nonprofit industry. For the last ten years she has worked exclusively with rare disease organizations, including the Huntington’s Disease Society of America and Angioma Alliance. Her experience with her daughter’s rare illness has helped her better understand and successfully navigate the unique challenges faced by the rare disease community. Stephanie’s experience in patient advocacy, education, and fundraising will ensure the Pheo Para Alliance is well poised to fulfill its mission.
Pheo Para Alliance President, Matthew Capogreco, states, “This marks a monumental milestone in Pheo Para Alliance history. Stephanie’s experience empowering rare disease communities and bringing together patients, clinicians, and researchers will allow us to dive deeper into accomplishing our mission of investing in research to accelerate treatments and cures and empowering patients, families, and medical professionals through advocacy, education and a global community of support. This is yet another reason for pheo para families to be hopeful.”