Aimee Powell joined the Pheo Para Alliance in August 2017, after serving as Interim Executive Director for the Pheo Para Troopers. Prior to joining that organization, she worked as a freelance writer/designer with a strong background in technical and business communications. She began the freelance portion of her career to allow her the flexibility to care for her mother, who had for decades struggled with a host of worsening symptoms without an apparent cause. When her brother, John, was diagnosed with a carotid body tumor in 2005 an inherited syndrome was suspected. However, it wasn’t until 2014 that a diagnosis of pheochromocytoma/paraganglioma, caused by the SDHB mutation, was confirmed for both.

After losing her brother to the disease in 2015, she decided to concentrate her efforts on fulfilling her brother’s desire to help other patients via outreach and promoting public awareness of pheo/para. She is a past member of the Board of Directors for the African Well Fund, where she primarily worked on fundraising and publicity.

Aimee lives in southern California with her family.